Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,025 posts

All posts for February 2018

A bad fall

Hello everyone. Walking normally along a flat pavement, around midday last week, I suddenly lost my sense of direction. I couldn't right myself, lost...

Hello everyone. Walking normally along a flat pavement, around midday last wee...

greenheath

•6 years ago

14 Replies

Recently diagnosed with PMR

I just turned 60. I was diagnosed with PMR on November 25, 2017. Spent two and half days in ER. They prescribed 25mg to be taking each day n to lower it 5 mg a...

I just turned 60. I was diagnosed with PMR on November 25, 2017. Spent two and h...

Jn4555

•6 years ago

63 Replies

Methotrexate update 2

What a difference a day makes! Woke up this morning with no nausea at all! I feel very dizzy, guessing b/p up a bit, but it's now 1 pm and still ok. Am waiting...

What a difference a day makes! Woke up this morning with no nausea at all! I fee...

Content1

•6 years ago

1 Reply

Want to take advantage of all our features? Just log in!

What is 50% person in PMR/Pred terms please?

Hi Polly-peeps... When I spoke about my high starting dose of 40mg, to get relief from pain, in a previous post, someone made the observation that I may be a...

Hi Polly-peeps... When I spoke about my high starting dose of 40mg, to get relie...

caterpillar

•6 years ago

7 Replies

Research Roadshow event in Peterborough 24 April

If you live in the East Midlands of England, this event is definitely for you! Unfortunately the first planned date for a research roadshow in Peterborough had...

If you live in the East Midlands of England, this event is definitely for you! U...

Polywotsit

PMRGCAuk team member•6 years ago

Be the first to reply

Low Blood Pressure

Has anyone out there any ideas about how to keep the BP up? Since I got out of hospital, mine keeps dropping so that I feel like a wet rag and can't function...

Has anyone out there any ideas about how to keep the BP up? Since I got out of h...

stellafmdm

•6 years ago

12 Replies

Bring on the Locusts

I'm NOT saying I'm unlucky, BUT... There is of course the 2 years of pain and anguish wasted on the misdiagnosis of PMR. Then, the diagnoses of BOTH PMR &...

I'm NOT saying I'm unlucky, BUT... There is of course the 2 years of pain and a...

Hidden

•6 years ago

33 Replies

~Gastric disturbances each summer it seems? ~

Hi fellow friends It's been a while since I last posted but would like to gauge from our slightly longer term steroid swallowers if any have experienced more...

Hi fellow friends It's been a while since I last posted but would like to gauge...

Megams

•6 years ago

6 Replies

PMR Treatment

Following a diagnosis of having PMR which manifested itself with severe upper arm muscle pain almost overnight I was prescribed 15mg prednisolone reducing by...

Following a diagnosis of having PMR which manifested itself with severe upper ar...

wolfgang237

•6 years ago

26 Replies

Tea and chat Woodbridge, Suffolk

Tea and chat get together on Thursday 1st March 2.00pm Wyevale Garden Centre Grundisburgh Rd, Woodbridge, Suffolk IP13 6HX Come and join us!

Tea and chat get together on Thursday 1st March 2.00pm Wyevale Garden Centre Gru...

Soosie56

•6 years ago

Be the first to reply

Healing naturally

Hello, After many years of suffering from various aches and pains in my neck, shoulders and back, I am only just now realizing that these symptoms have a name...

Hello, After many years of suffering from various aches and pains in my neck, sh...

Hidden

•6 years ago

12 Replies

Status update and Travel/taper question.

Status update and travel question. I was in a bit of a quandri last weekend trying to figure out how to handle the 7-6mg 38 day taper. I was experiencing...

Status update and travel question. I was in a bit of a quandri last weekend tryi...

Hindags

•6 years ago

9 Replies

Can you just remind me learned PMR Comrades

Hi everyone I wondered if I could ask your views. I have reduced slowly from 4mgs to 3mgs. Started taking 3mgs everyday over weekend. I am so tired I feel...

Hi everyone I wondered if I could ask your views. I have reduced slowly from 4...

JulieR2

•6 years ago

9 Replies

Hip infection

Hi, I went into hospital this year to have an elective hip op, when the surgeon woke me up he said "sorry when we opened you up it was full of black gunk,so we...

Hi, I went into hospital this year to have an elective hip op, when the surgeon ...

Julie_mia4

•6 years ago

6 Replies

I saw this and....

wanted to share it with you.

IdasMum

•6 years ago

1 Reply

Anyone out there?

I have Sjorgrens Syndrome, PMR and recently diagnosed with Bronchotrachea Malacia. I would dearly love to know if anyone out there has this disease. I can...

I have Sjorgrens Syndrome, PMR and recently diagnosed with Bronchotrachea Malaci...

Smithann

•6 years ago

17 Replies

Wanting to present argument for long term preds, (started at 40mg 2weeks ago) & slow taper to doc....

Hi fellow Pollys, It has taken over 2 years to get a PMR diagnosis... had to resort to a private GP (UK)... I was crippled with pain in my shoulders, she...

Hi fellow Pollys, It has taken over 2 years to get a PMR diagnosis... had to res...

caterpillar

•6 years ago

19 Replies

Swelling in one leg and cramped feeling in calf muscle

Hello Everyone, I posted in Dec re a few issues I was having. Swollen right knee, costochondritus and problems with right shoulder. Had a series of...

Hello Everyone, I posted in Dec re a few issues I was having. Swollen right kne...

Irldino

•6 years ago

19 Replies

Pain From Physical Activity

Hi all! I find if I do the slightest physical activity, I will pay for it for at least a week. For example, I am a teacher and had to bring some binders home...

Hi all! I find if I do the slightest physical activity, I will pay for it for at...

smoothilly

•6 years ago

18 Replies

pmrgca Scotland Dundee meeting 20/2/18

All welcome to come and join us, should be an interesting meeting

Nannie-C

•6 years ago

2 Replies

"Coming back to where you started is not the same as never leaving.” ~ Terry Pratchett

Today I reduced my Prednisolone intake to 60 mg. Woooo Hoooo! It seems I should be further along, because I started with 60 mg, back on November 13, 2017;...

Today I reduced my Prednisolone intake to 60 mg. Woooo Hoooo! It seems I shoul...

Hidden

•6 years ago

89 Replies

Greetings

Responding to Kate Gilbert's request, whose book is very helpful. Hi, I live in Iowa City and am 62. I was diagnosed in May after a month on not being able to...

Responding to Kate Gilbert's request, whose book is very helpful. Hi, I live in...

mleginton

•6 years ago

10 Replies

Does taking Pred. Cause irritability

I’m still reducing with great success. Down to 12mg by reducing half a mg. every two weeks. But occasionally I feel irritable, angry even, with everyone and...

I’m still reducing with great success. Down to 12mg by reducing half a mg. every...

Tonysue

•6 years ago

53 Replies

CT scan with contrast

Thank you all so much for your kind words and advice on my CT scan today.I had the contrast as explained by the radiologist it would be a clearer picture and...

Thank you all so much for your kind words and advice on my CT scan today.I had t...

lizzie47

•6 years ago

2 Replies

Ear we go again!!

Thought it was sorted for the repeat prescription for pred. with GP pharmacy if I needed to higher dose. Myself, Rhumy & Doc's. seem to be hearing, writing...

Thought it was sorted for the repeat prescription for pred. with GP pharmacy if...

Hidden

•6 years ago

15 Replies

Ear blocked

Hi again . I am feeling very scared and depressed this morning. Since I lowered my prednisone from 12.5 to 10 I started having a blocked feeling in my right...

Hi again . I am feeling very scared and depressed this morning. Since I lowered...

Sallydvs

•6 years ago

23 Replies

Morning nausea

Wondering if anyone can explain why I've started to feel sick every morning when I wake up. I've had PMR for a year and have slow-tapered down to 5mg Pred....

Wondering if anyone can explain why I've started to feel sick every morning when...

Hidden

•6 years ago

23 Replies

Nutritionist visit

Finally had an appointment with a very highly regarded nutritionist this week for my pmr. My diet (although would always have a decent dinner) consisted of a...

Finally had an appointment with a very highly regarded nutritionist this week fo...

Allsgrandso

•6 years ago

108 Replies

ECHINACEA

Any views on taking echinacea. Had a bad cold and been taking this herb in capsule form for 3 days. It has stopped most of the cold symptoms, so I was...

Any views on taking echinacea. Had a bad cold and been taking this herb in caps...

Reethebeat

•6 years ago

13 Replies

GCA : Preventing blindness - fast-tracking suspected GCA patients - Outstanding Best Practice

Southend University Hospital NHS Foundation Trust – Preventing blindness by fast-tracking suspected Giant Cell Arteritis patients to immediate treatment...

Southend University Hospital NHS Foundation Trust – Preventing blindness by fast...

Ruadh

•6 years ago

38 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2018

A bad fall

Recently diagnosed with PMR

Methotrexate update 2

What is 50% person in PMR/Pred terms please?

Research Roadshow event in Peterborough 24 April

Low Blood Pressure

Bring on the Locusts

~Gastric disturbances each summer it seems? ~

PMR Treatment

Tea and chat Woodbridge, Suffolk

Healing naturally

Status update and Travel/taper question.

Can you just remind me learned PMR Comrades

Hip infection

I saw this and....

Anyone out there?

Wanting to present argument for long term preds, (started at 40mg 2weeks ago) & slow taper to doc....

Swelling in one leg and cramped feeling in calf muscle

Pain From Physical Activity

pmrgca Scotland Dundee meeting 20/2/18

"Coming back to where you started is not the same as never leaving.” ~ Terry Pratchett

Greetings

Does taking Pred. Cause irritability

CT scan with contrast

Ear we go again!!

Ear blocked

Morning nausea

Nutritionist visit

ECHINACEA

GCA : Preventing blindness - fast-tracking suspected GCA patients - Outstanding Best Practice

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive