Progress ?

[Oldman-1]

Just when my health was going according to plan, I get 4 minor flare up`s. Crazy, unpredictable state of affairs. Loss of muscle, weight loss, some general weakness, still eating well, think I`m just another who found there are so many twists and turn with this Medical problem.

[PMRpro Ambassador]

Losing muscle will cause the weight loss. But do speak to your doctor and ask if physio is an option.

[Oldman-1 in reply to PMRpro]

I`ve been given the option of free exercise and swimming. Cold water baths don`t do this complaint any good whatsoever. But thanks.

[PMRpro Ambassador in reply to Oldman-1]

No - targetted exercises to benefit the specific muscles. Not just "go for a walk".

It is mentioned in the guidelines...

[SheffieldJane]

It’s sounds like you’ve reduced too far and too fast. My appetite is the first thing to go. Not sure about the muscle loss, do you feel weak?

[Oldman-1 in reply to SheffieldJane]

Yes, occasionally, weakness is an observation.

[SheffieldJane]

Sorry, so you said. What symptoms lead you to think that this is a flare of your condition rather than an effect from steroid use.

[Oldman-1 in reply to SheffieldJane]

I`m not an expert on the medical condition of my body. I can explain actions and reactions. As far as medication is going, there is no change of dosage for the 9 weeks. ( My consultant has designed an 11 month program ) I describe my occurrence as the feeling of the original symptoms, though much reduced.

[SheffieldJane]

When my symptoms start peaking through it usually means that I am not on enough Pred. Unfortunately, if left, it tends to worsen. I do hope that you are better soon.

[Oldman-1]

This recent week, I`ve been decorating at a daughters house. I have a reputation for being accurate so this is why I was asked to do it. Shock horror, I`ve been shaking like an Autumn leaf. Very annoyed at myself for not being in control of my dexterity, cursing under my breath. Calling myself all sorts. At the next consultation, this will be one of the foremost points worth a mention. Every day I examine my lucidness. Trying to get my mind set back the straight and strong is an every day desire and intention. But ... haha this medical state has other ideas. Oddly enough, driving a car seems to put me back into normality. So far, the whole experience is an unknown journey.