CBD oil

[Chrissy1953]

Hi. Has anyone tried this . Was it Ok to take with steroids and did it help PMR.

Would love it to be a booster if needed.

[Pongo13]

Two days ago idasmum posted almost identical question. Have a look at replies and then today another post tells us where we can purchase half price in UK.

[Rose54]

Hi

A lot use it for fibromyalgia so it must do something

as everything different results for different people

[PMRpro Ambassador]

healthunlocked.com/pmrgcauk...

[Chrissy1953 in reply to PMRpro]

Thanks PMRpro. Seeing Dr this week. I'm going to have a chat before taking. Twice I've got to 7.5 mg prenisolone and had a flare. I hoped it could help to get me further. I'm also having terrible pain in both hips and sleeping at night a nightmare. I know my journey so far is nowhere near some but bit tired and fed up and willing to try alternatives. 😞

[PMRpro Ambassador in reply to Chrissy1953]

Where is the hip pain? If it is on the outside, about where you can feel your hip bone, it could well be trochanteric bursitis, often part of PMR and once it gets established in PMR neither exercises nor increasing the oral pred dose will help much or quickly. I had it badly at the start and it took a good 6 months for it to fade on oral pred at well above 10mg. A steroid injection - and it is gone in a few days for me.

I can't remember how long you have been on pred - but getting to 7.5mg twice just tells you that is just below the dose you are looking for: the lowest dose that manages the symptoms as well as the starting dose did. It is a low dose, similar to the amount of corticosteroid your body makes naturally, getting the dose lower won't alter the amount of steroid circulating in your body as it limits what it makes to just top it up. Trying to force a reduction - however you do it - just runs the risk of triggering a flare which then becomes increasingly difficult to manage.

It doesn't mean you won't get lower, just not yet. The signs are that over time the autoimmune process that causes the inflammation fades slowly. As that happens you will get to a lower dose - but you can't overtake, however much you want to.

[Sailormo in reply to PMRpro]

I'm down to 7mg but having hip pain at night it wakes me up, but, I thìnk I'm having a bit of a flare up been feeling a bit rough fora week or so, due to drop to 6mg this week but,will stay on 7 its taken me months to get down to this.

[PMRpro Ambassador in reply to Sailormo]

It's taken me years - and I still can't get to 7mg reliably!

[Chrissy1953 in reply to PMRpro]

Thanks PMRpro.

I need you to reel me in sometimes. I think the hip pain may be bursitis. The pain is like a burning ache and goes from hip joint to halfway. down side of leg . I use cold packs and that helps. Saw a Dr a couple of months ago who prescribed co.codamol. seeing my own Dr Weds see what he says.

[piglette in reply to Chrissy1953]

Could it be sciatica?

[Chrissy1953 in reply to piglette]

Don't think so piglette. Have had sciatica and it's not the same. Plus it's both hips

[PMRpro Ambassador in reply to Chrissy1953]

Co-codamol????? What are they like!!!!!!

[Chrissy1953 in reply to PMRpro]

Codeine phosphate and paracetamol 8/500mg. Stronger painkiller. Subscription only.

[PMRpro Ambassador in reply to Chrissy1953]

The "they" was referring to the doctors! I know what cocodamol is - and it doesn't do a lot for PMR or bursitis!!!

[Chrissy1953 in reply to PMRpro]

Sorry. Read your post wrong 😕

[PatB1948]

I heard about this CBD oil today and as I am on warfarin, googled to see if it has any interaction. It seems that it does, it makes the blood even thinner and also makes the warfarin stay in the system longer.

So be careful all Warfarin patients.

Pat

[PMRpro Ambassador in reply to PatB1948]

Thanks Pat - I'd forgotten to mention that.