Have you in the past known anyone found benefit from Rosehip oil, ?Dr Rod Hughes was quoted in paper this week saying of it's help with Arthritis, also Aloe gel which Kate Gilbert mentioned in her book?
I don't think any of them are a substitute for pred. But some of them do help some people. I think ginger helps me. And the jury is still out but I think aloe vera juice is helping me. Last spring I was taking it when I made an uneventful taper from 3 to 1.5 in .5 mg steps. Then there was a perfect storm of things and I don't know if any or all of them contributed to the flare I then experienced. I was also tapering off the light therapy I get (helps reduce pain causing cytokines) I ran out of aloe vera and didn't buy more, my doctor encouraged me to carry on with taper without pause and use up the rest of my tablets. Anyway, long story short, I increased my pred again, and got the flare under control with some difficulty. I got increased light therapy for a while, now tapering again, and after a few months thought I'd try the aloe vera again. After about six weeks of the aloe vera I'm finding the tapering is becoming easier again. But who knows if it really is the final piece of the puzzle to defeat the flare once and for all, or would it have happened anyway? I do think it interesting, however, that on both occasions when I'd been taking aloe vera for a few weeks the taper became easier. Perhaps it helps with pred withdrawal?
Yes it's expensive, I'm sure the price has gone up. I get pure aloe vera juice (was using the gel but that contains carrageenan which may not be a good idea, not sure why) and it's C$15 plus tax, and takes me only 10 days to use it all up at two doses of 60 ml a day. And like many of these things I don't think it's reasonable to expect an overnight improvement, it's something which builds up gradually. If it indeed helps me keep my pred dose down I'm in favour of it. I'm not doing well with pred, it's been hard on me although it is a necessary evil.
Yes, me too, if I thought there was something else out there to help me lower, and having seen both mentioned with good results, especially aloe of some sort........well,.....will have to work things out.....now being prediabetic, and dexa scan results not good, I want anything that will help me lower from 10mg, 6 years and still struggling!😕
If you have the wherewithal and ready access to a good brand, I wouldn't hesitate to recommend you try the aloe vera for a few weeks and see if it seems to help. I've heard people complain about the flavour and I can only assume they've tried something with added flavourings, because there's really not much to it. The aloe vera juice I take is aloe vera plus a vanishingly small amount of citric acid (presumably as a preservative) and that's all it tastes of, a mild slightly acidic taste. I also like to have a cup of ginger tea (made with about a teaspoon of freshly grated gingerroot) every evening and fancy this helps me get through the night so I'm not one who is suffering in the morning as so many seem to.
No doubt! I was encouraged to try it because an acquaintance of mine has a skin condition which makes it look like his hands have been scalded. When it flares up he takes aloe vera internally (less than I've been taking recently) and it clears up. I figured if it helped skin which looked like his it had to have some effect on inflammation so worth a shot! And I know aloe vera soothes sunburn too.
I've got cbd in bottle format. I use turmeric capsules too. Makes me feel I'm doing something positive. If I got on a plane and left these behind I wouldn't cry. If I'd forgotten my steroids..... That would be a DISASTER.
I've used several CBD topical ointments and by treating one leg but not the other, I noticed a difference between the two, but the analgesic properties weren't dramatic. I've also used the eatables at low doses and found that they only worked in conjunction with something like Ibuprofen, which also was not very effective alone. It may be that higher doses of CBD would produce more dramatic effects, I just haven't tried them, and the stuff is expensive here in Washington State. I have friends with osteoarthritis who swear by them, but I haven't experienced dramatic results for my PMR.
I remember now reading something like this once before - and saying it would be interesting to see a study on CBD as a steroid sparer: it slows down the excretion of steroids and that increases the amount in your body. So theoretically you should need a lower dose to get the same effect.
I use CBD oil for arthritic pain, fatigue and to help my IBS. I am still on 17mg a day Pred though for PMR. I used to take opiod painkillers for the arthritis in addition but now not taking any opiods just 2 paracetamol a day! So CBD has helped me. As I understand it, as long as you leave a 2 hour gap between Pred and CBD it should be fine. I would speak to your GP too. Mine was well aware of the benefits if CBD but then I am lucky to have a good GP xxx
I am looking to try some in the future too...I am trying cats claw right now but haven't taken it long enough...would be nice to take less opiates, but they are helpful at times...dependent isn't addicted...use as needed...and some say cats claw shouldn't be taken while on prednisone, some say it's ok...I'll soon find out!!
I am still waiting for my order of CBD capsules however......I'd forgotten that I have some Magnesium Oil spray. I hadn't noticed a massive impact in the past but have been using it on my hands this week and very impressed with the result. It takes longer than the Immortelle Essential oil to work but works for longer and seems quite effective.
I've reduced my analgesia intake to 1000 gm Paracetamol per day
I had been taking Magnesium some time back but bought the wrong type last time in the UK so stopped. Will pick up the chelated one's in May.
Have just read read the Kate Gilbert's book, I haven't read it since I was first diagnosed. Good to revise.
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