Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2017

Another Rheumi with an attitude problem..or maybe it's just a cultural barrier....

Today I went to my long awaited rheumatology appointment.The whole department had shut down for the entire summer, while I was on mtx and Prednisone and should...

Today I went to my long awaited rheumatology appointment.The whole department ha...

Gaijin

•7 years ago

49 Replies

Jeanie

In my last post forgot to add my Dr said I dont need any more blood test now unless I get any problem with my head or my eyes is this right Ater reading some...

In my last post forgot to add my Dr said I dont need any more blood test now unl...

Jeanmh

•7 years ago

16 Replies

I am going to ask doc for a referral to pmr Pro for six months.

I am going to ask doc for a referral to pmr Pro for six months in summer I can bring my camper van. 😜

I am going to ask doc for a referral to pmr Pro for six months in summer I can b...

Rocketronzy

•7 years ago

21 Replies

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Jeanie

Morning just need a little bit of advice from you lovely people .My Dr wants me of steroids by Christmas after been diagnosed with GCA early in November 2016...

Morning just need a little bit of advice from you lovely people .My Dr wants me ...

Jeanmh

•7 years ago

7 Replies

Hello everyone

Thought I better finally introduce myself after lurking about here for past few weeks!! Delighted to have found this community and can see the wealth of...

Thought I better finally introduce myself after lurking about here for past few ...

Allsgrandso

•7 years ago

40 Replies

I am so frustrated I could spit nails...

Saw my rheumy this morning in New York.. This was our second consultation. My prior rheumy, her partner, transferred to a practice office too far away for...

Saw my rheumy this morning in New York.. This was our second consultation. My ...

GOOD_GRIEF

•7 years ago

17 Replies

Not more drugs.........

I posted 17 days ago after developing awful pains. Started With my knees and then, burning shoulders, neck,sore hips lower back , thighs, and upper arms. So...

I posted 17 days ago after developing awful pains. Started With my knees and th...

Elaine-W

•7 years ago

11 Replies

Rheumatoid arthritis

Hello i am 22yrs old .i have been sufffering from anemia since 3 yrs.now my blood reports are esr:55mm/hrn crp:40mg/l.so i have been using medicine for about 3...

Hello i am 22yrs old .i have been sufffering from anemia since 3 yrs.now my bloo...

Hidden

•7 years ago

2 Replies

Flare (of course!) Creeps up when you're not looking!

A month ago I was feeling good. Felt on top of the PMR and was about to drop to 10mg. I weathered the BP issue and new meds didn't cause too many issues apart...

A month ago I was feeling good. Felt on top of the PMR and was about to drop to...

IdasMum

•7 years ago

6 Replies

Urinary and Antibiotics (again)

Following on from my previous post re urinary infections. As stated before I was put on a 3 day antibiotic course to start with which didn't clear it and then...

Following on from my previous post re urinary infections. As stated before I was...

Hidden

•7 years ago

32 Replies

Zero day prednisolone and goodbye GCA

Happy to report that my plan of reducing prednisolone over 15 monthly reductions has gone to plan! Tapered from 40mg June 2016 to zero today. This is my first...

Happy to report that my plan of reducing prednisolone over 15 monthly reduction...

DevonMichael

•7 years ago

38 Replies

Blood test results - help please!

Dear Friends, I had a blood test last week to check that I had not become diabetic (very tired all the time) and to check my inflamation levels (sorry is it...

Dear Friends, I had a blood test last week to check that I had not become diabet...

Dobermanlover

•7 years ago

16 Replies

GCA and Tocilizumab

I had my first infusion nearly three weeks ago. For over a year my ESR and CRP have been really high, generally in the 70's. My first blood test has shown a...

I had my first infusion nearly three weeks ago. For over a year my ESR and CRP h...

christine2715

•7 years ago

2 Replies

Recovered from Flare, tapering resumes...

Hi Everyone, School is back in session and I am back to working full time. I am so grateful to have had the summer off to recuperate. Unfortunately as you...

Hi Everyone, School is back in session and I am back to working full time. I am...

Marie1479

•7 years ago

30 Replies

Hit the wall

Hi everyone, As you ll know I am newly diagnosed TA. We are spending time with our daughter her husband and grandchildren at the moment. After 9 days of...

Hi everyone, As you ll know I am newly diagnosed TA. We are spending time with o...

Rowboat

•7 years ago

15 Replies

The Lighter Side - PMR for 3 Years and Welcome Back 'pastit' (aka Petee!). More thoughts... ;-)

Hi Pete / all here This is a really interesting thread - thanks :-). I've repeated it as a New Post for the benefit of others here - with a mention to you...

Hi Pete / all here This is a really interesting thread - thanks :-). I've rep...

markbenjamin57

•7 years ago

18 Replies

1936 struggler

PMR/GCA For over 12 months .GCA the most painful of the two ,came down Pred too fast and now back up to 30mg . Headaches, Shoulder, Back, and fingers/wrist ,...

PMR/GCA For over 12 months .GCA the most painful of the two ,came down Pred to...

nessclif

•7 years ago

29 Replies

😲Just a taste, of coming down too fast.😬

Prednisanalone ,that is dropped from 10 to 6 (crazy doctors) I have never felt as lethargic for years. Well now I know. 🙄😬 I'm going back to ten for the...

Prednisanalone ,that is dropped from 10 to 6 (crazy doctors) I have never felt a...

Rocketronzy

•7 years ago

10 Replies

Fatigue (again)

I've had PMR 4 years. Tapering from 6-5.5 mg pred. Have been overwhelmed by fatigue that hasn't been present for quite a while. This fatigue is not the...

I've had PMR 4 years. Tapering from 6-5.5 mg pred. Have been overwhelmed by fat...

1Purplecrow

•7 years ago

74 Replies

Statins???? NOOOOO - chocolate :-)

A paper published in the New England Journal of Medicine has shown that endothelial progenitor cells "can repair endothelium and are lowered by cardiovascular...

A paper published in the New England Journal of Medicine has shown that endothel...

PMRpro

Ambassador•7 years ago

13 Replies

Likely GCA but not yet diagnosed and scared to death!

Firstly, I want to say this is a wonderful and valuable forum. Although this is my first post, I think I've already read just about every post in your...

Firstly, I want to say this is a wonderful and valuable forum. Although this is...

AnnS

•7 years ago

28 Replies

Anti-inflammatory diet

Has anyone here tried to supplement the Pred with diet? I'm OK taking meds, but I'd rather not, if there is an option. So I went to a naturopath, who put me...

Has anyone here tried to supplement the Pred with diet? I'm OK taking meds, but...

RheaV

•7 years ago

14 Replies

Prednisone dose

I am taking 45mg daily for Gout. It reduces the pain and swelling but has to be taken at breakfast. By 02:00 the following morning I am in agony again. Is...

I am taking 45mg daily for Gout. It reduces the pain and swelling but has to be ...

kityardley

•7 years ago

16 Replies

Dripping head

Diagnosed with GCA after a biopsy in early May this year. Started on 60mg Preds immediately. Now on 15mg. Coping ok apart from the dreadful heavy sweating of...

Diagnosed with GCA after a biopsy in early May this year. Started on 60mg Preds ...

Suuha

•7 years ago

9 Replies

I'm new and would love to hear your thoughts

I am a 51 yr old female. I have been experiencing PMR symptoms and working with my doctor for the past 6 months. My doctor sent me to a rheumatologist (2...

I am a 51 yr old female. I have been experiencing PMR symptoms and working with...

hapi

•7 years ago

16 Replies

PMR and colds

Hi I recently had great advice regarding alcohol consumption while taking prednisolone and also managing time differences while on holiday. I am currently in...

Hi I recently had great advice regarding alcohol consumption while taking predn...

Mitziecat

•7 years ago

20 Replies

Tinnitus and dizziness

I've just been prescribed serc-16 (betahistine dihydrochloride) for dizziness and tinnitus. When I collected my prescription today my pharmacist suggested I...

I've just been prescribed serc-16 (betahistine dihydrochloride) for dizziness a...

maria40

•7 years ago

28 Replies

Restless muscles make it difficult to sleep. Is this common?

Hello. I'm a newbie. So glad to find this very helpful and informative group! Took my first dose of Dilacort (Prednasone) 15mg yesterday and have just taken my...

Hello. I'm a newbie. So glad to find this very helpful and informative group! To...

Purple-Owl

•7 years ago

17 Replies

Contacting

Can someone tell me how to send a pm

Rose1bud

•7 years ago

2 Replies

PMR

I am new to here and had PMR diagnosed 18months ago with my husband then diagnosed 6 weeks after me. He is managing on 8 mgs a day. I got down to 3mg -...

I am new to here and had PMR diagnosed 18months ago with my husband then diagno...

paulaluke

•7 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2017

Another Rheumi with an attitude problem..or maybe it's just a cultural barrier....

Jeanie

I am going to ask doc for a referral to pmr Pro for six months.

Jeanie

Hello everyone

I am so frustrated I could spit nails...

Not more drugs.........

Rheumatoid arthritis

Flare (of course!) Creeps up when you're not looking!

Urinary and Antibiotics (again)

Zero day prednisolone and goodbye GCA

Blood test results - help please!

GCA and Tocilizumab

Recovered from Flare, tapering resumes...

Hit the wall

The Lighter Side - PMR for 3 Years and Welcome Back 'pastit' (aka Petee!). More thoughts... ;-)

1936 struggler

😲Just a taste, of coming down too fast.😬

Fatigue (again)

Statins???? NOOOOO - chocolate :-)

Likely GCA but not yet diagnosed and scared to death!

Anti-inflammatory diet

Prednisone dose

Dripping head

I'm new and would love to hear your thoughts

PMR and colds

Tinnitus and dizziness

Restless muscles make it difficult to sleep. Is this common?

Contacting

PMR

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