I am new to here and had PMR diagnosed 18months ago with my husband then diagnosed 6 weeks after me.
He is managing on 8 mgs a day. I got down to 3mg - everything was going ok and then this morning I am back to square one. This is the second time I have got close to being able to wean myself off and Wham its back again. I woke during the night - was in so much pain it felt like all my muscles/joints were in spasm and I couldnt relax. The pain was so bad the tears came as I could even turn over in bed. To get out of bed and to sit on the loo unbelievable the backs of my legs are so painful. Just when you have a day of wanting to do so much - I cant even bend down to pick something up from the floor.
Will it ever go away - its so debilitating.
A fellow PMR sufferer.