Fatigue (again): I've had PMR 4 years. Tapering... - PMRGCAuk

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Fatigue (again)

1Purplecrow profile image
1Purplecrow
โ€ข74 Replies

I've had PMR 4 years. Tapering from 6-5.5 mg pred. Have been overwhelmed by fatigue that hasn't been present for quite a while. This fatigue is not the leaden-legs -and -feet -type, but just general malaise.

My son died last week, ( not unexpected, but nonetheless...) I'm wondering if the emotional upset has contributed to the debilitating fatigue?!

Your thoughts are welcome. j

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1Purplecrow profile image
1Purplecrow
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74 Replies
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PMRpro profile image
PMRproAmbassador

One word: adrenals...

You have been under horrendous strain - your adrenal function is not returned to normal and there is nothing in reserve.

I'm so sorry to hear that - however expected it is still a shock and distressing. Hugs xxxx

1Purplecrow profile image
1Purplecrowโ€ข in reply toPMRpro

Thank you, J

SnazzyD profile image
SnazzyD

It wouldn't surprise me. I've seen lots of people bereaved as well as myself and no matter how expected it is or a release or for the best, nothing prepares one for the finality, what was, what might have been and what can no longer be said or done. Every cell in your body will be feeling it. Time for some TLC.

1Purplecrow profile image
1Purplecrowโ€ข in reply toSnazzyD

Thank you, you are right. j

Baileyw06 profile image
Baileyw06โ€ข in reply toSnazzyD

I am very sorry to hear about your loss๐Ÿ˜ฅ

1Purplecrow profile image
1Purplecrowโ€ข in reply toBaileyw06

๐Ÿ™๐Ÿผ

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi Jerri,

So sorry to hear your news. It's still very traumatic even when it's not totally out of the blue...I know. I send you hugs as well.xx

As PMRpro says..mainly adrenals, and obviously not helped by recent events. I would stick at 6mg for the next few weeks, or even longer if necessary to get you through what will be a very difficult time.

Your reductions can wait awhile! Other more important things to think about. Take care.

1Purplecrow profile image
1Purplecrowโ€ข in reply toDorsetLady

๐Ÿ˜ขthank you. j

Rose54 profile image
Rose54

Hi

So sorry to hear about you son

xxx

AMG38 profile image
AMG38โ€ข in reply toRose54

My sympathy to you please give yourself plenty of tlc

1Purplecrow profile image
1Purplecrowโ€ข in reply toRose54

๐Ÿ™๐Ÿผ, J

1Purplecrow profile image
1Purplecrowโ€ข in reply toRose54

Thank you. J

GOOD_GRIEF profile image
GOOD_GRIEF

Oh, my. I am so sorry for your loss, Purplecrow. The loss of a loved one is hard, and the loss of a child the hardest.

I think you can expect that you will have some feelings of malaise and disorientation for some time. That is totally normal. Your world has changed significantly, and you are adjusting to a new reality. That is exhausting for the perfectly healthy.

This is a time to lean on your friends, to let them help you, whether that's with the daily grind or just being close by. You've been a friend to so many here, and we're here for you. I'm sure you have many others much closer who will be wanting to help you however they can, who are just waiting for the cue from you.

Watch over yourself. I'll be thinking of you...

1Purplecrow profile image
1Purplecrowโ€ข in reply toGOOD_GRIEF

๐Ÿ™๐Ÿผ

Insight329 profile image
Insight329

So sorry for your loss. Take good gentle care of yourself!

1Purplecrow profile image
1Purplecrowโ€ข in reply toInsight329

Thank you๐Ÿ™๐Ÿผ

Janann25 profile image
Janann25

I'm so sorry to hear of your loss. I know from experience that even when this news is expected, it doesn't make it any easier. My own loss was followed by the diagnosis of this illness so I truly know that it's very important to give yourself a lot of TLC. Please take lots of care of yourself and know that many of us are thinking of you at this sad time.

Jan

1Purplecrow profile image
1Purplecrowโ€ข in reply toJanann25

๐Ÿ™๐Ÿผ

Zofitmogelijk profile image
Zofitmogelijk

O purple crow How sad. I can't be much of support living so far away but I really do hope you get the power to go through this. Try to send you some

Love๐Ÿ’ซ๐Ÿ€

1Purplecrow profile image
1Purplecrowโ€ข in reply toZofitmogelijk

Thank you. j

Ronswife profile image
Ronswife

My deepest sympathy for your pain and loss.

1Purplecrow profile image
1Purplecrowโ€ข in reply toRonswife

๐Ÿ™๐Ÿผ

venezia1 profile image
venezia1

Dear Purplecrow, I am so sorry for your loss. And even though expected it will have caused you deep shock and sorrow. I lost my partner three months ago, after many weeks in hospital. I deliberately increased my pred from 7.5 to 10mg for the whole of that time and am only now starting to come down again. I have the most debilitating fatigue most of the time, and only in the last few days have noticed a slight improvement, mostly, I think, because I forced myself to go out to a favourite place to walk for an hour, very slowly, with two sticks...I seem to feel better mentally, which helps!

I do hope your fatigue lessens soon. Meanwhile try to be kind to yourself, and if possible, let nature help.

1Purplecrow profile image
1Purplecrow

Thank you for your kind words. J

CT-5012 profile image
CT-5012โ€ข in reply to1Purplecrow

So very sorry ๐Ÿ™

30048 profile image
30048

Oh goodness...my sympathy to you. Of course...... my thoughts and prayers...just take care of yourself.

1Purplecrow profile image
1Purplecrowโ€ข in reply to30048

Thank you. J

I am so sorry to hear of your story. I fully endorse the advice, love and support from others on this forum. Take care of yourself.

Peter

1Purplecrow profile image
1Purplecrowโ€ข in reply to

Thank you Peter. J

Rowboat profile image
Rowboat

Thinking of you during this tough time, I am very sorry for your loss.

1Purplecrow profile image
1Purplecrowโ€ข in reply toRowboat

Thank you. J

Hollyseden profile image
Hollyseden

So sorry for your loss. Big hugs x

1Purplecrow profile image
1Purplecrowโ€ข in reply toHollyseden

Thank you. J

KaseyP profile image
KaseyP

Purplecrow, my thoughts are with you in the loss of your son. It is certainly a hard, life changing event that will take great energy. Peace to you.

1Purplecrow profile image
1Purplecrowโ€ข in reply toKaseyP

Thank you. J

bunnymom profile image
bunnymom

Oh purplecrow that is very sad news. No wonder you are so tired and fatigue does make everything worse. Wishing you well today.

1Purplecrow profile image
1Purplecrowโ€ข in reply tobunnymom

Thank you. J

Suzanne457 profile image
Suzanne457โ€ข in reply to1Purplecrow

Dear Purplecrow .... Everyone here has expressed so well to you my own thoughts and feelings concerning the most devastating loss of your son. My heart truly goes out to you ๐Ÿ’” .

Suzanne

1Purplecrow profile image
1Purplecrowโ€ข in reply toSuzanne457

Thank you. J

suzy1959 profile image
suzy1959

I just want to add my sympathies going out to you and, although we all say "look after yourself," I also know that most of us are very good at thinking that we are being good to ourselves when, actually it takes more effort to do this . Most of us have looked after others much better than ourselves in the past and this may be what led to our diagnoses. So, it needs a special effort to imagine what this really means and perhaps write down how you are going to take care of yourself and how you are going to allow yourself to feel whatever feelings come and what you are going to do with those feelings. If you need extra help with your feelings, then you are allowed to ask for it, whether that be bereavement counselling, the church, a special friend etc.

As far as I understand it, because our adrenals are not working and the pred. has taken them over, but has not the facility to react to extra stress the way our adrenals would, we have much less capacity for this than we would have normally, which means that we do have to take special care.

I can only imagine how hard this must be for you, so I truly mean it when I say "take care". X

1Purplecrow profile image
1Purplecrowโ€ข in reply tosuzy1959

Thank you. J

ali5son profile image
ali5son

So sorry for your loss xx

Slowdown profile image
Slowdown

So very sorry to hear your devastating news, nothing anyone can say to alleviate the grief except that you know this virtual family has you in their hearts.

1Purplecrow profile image
1Purplecrowโ€ข in reply toSlowdown

๐Ÿ™๐Ÿผ

Hindags profile image
Hindags

So sorry for your loss. Is there anything worse than losing a child? I don't think so. Not at any age, no matter whether it is expected or sudden.

Being utterly drained and depleted is a natural biological reaction. As others have said here. Every cell in your body feels the loss.

1Purplecrow profile image
1Purplecrowโ€ข in reply toHindags

Thank you for those kind thoughts. J

Allsgrandso profile image
Allsgrandso

I'm so sorry for your loss. Please be gentle to yourself xxx

Megams profile image
Megams

~Dear Purplecow - may you be surrounded and nurtured by the loving sympathy from us all.

Our hearts and our heads are never on the same page, even if we think we are prepared.

As Dorset Lady suggests, staying at 6mg for a while longer (as long as it takes as PMRpro would say), would be a wise consideration whilst processing your grief journey.

Abundant blessings & special thoughts of you in the days ahead ~

SheffieldJane profile image
SheffieldJane

Oh God! Purplecrow of course the emotional upset has triggered the malaise you feel. I am really sorry that you lost your son, so, so sorry. I was lying in bed thinking what's the point? My daughter, husband and grandchildren have gone to live in Australia for at least a year, in the air as we speak. Then I read your post, cried and felt ashamed. I'm going for a shower now, life must go on.

You have my sympathy from the bottom of my heart.

1Purplecrow profile image
1Purplecrowโ€ข in reply toSheffieldJane

You are so right, thank tou. j

camerashy profile image
camerashyโ€ข in reply toSheffieldJane

Oh SheffieldJane

You must be feeling so low at this point and of course when you read about Purplecrow of course it just sends out a reaction.. Hugs to you

SheffieldJane profile image
SheffieldJaneโ€ข in reply tocamerashy

Thanks camerashy, just thanks. X

York54 profile image
York54

So sorry for your loss. Please take care of yourself. Xx

Jankie profile image
Jankie

Deepest sympathies

So sorry for your loss

๐Ÿ˜”

Sandy1947 profile image
Sandy1947

Please accept my heartfelt condolences. Take as much Pred as you need to relieve pain and rest since your mind, body and soul are in shock. May the comforting actions of others provide love at this difficult time. My thoughts and prayers are with you.

1Purplecrow profile image
1Purplecrowโ€ข in reply toSandy1947

Thank you, J

Sandy1947 profile image
Sandy1947

My thoughts and prayers are with you at this difficult time.

Purple-Owl profile image
Purple-Owl

I'm not surprised that, however expected, your loss has taken it out of you. I'm so so sorry to hear of it. Combining this with pred reduction doesn't sound like a good idea at all.

karools16 profile image
karools16

Sorry for your loss, Purplecrow.

Much love and tight hugs.

nuigini profile image
nuigini

So incredibly sorry to hear about your son Purplecow. How devastating to have to say goodbye to a child. No wonder you are suffering. My sincere sympathy.

I would certainly be staying at 6 mg as suggested. In fact, I would probably be considering an increase to contend with what has to be one of the most stressful situations for a loving Mother to experience.

I hope you have supportive friends and loved ones giving you lots of supportive hugs. All I can do is send virtual hugs. Take care. OOOOOOO

camerashy profile image
camerashy

Dear Purplecrow

I am so sorry for the loss of your son...this has been a shock to your body as well as your mind so please..just go with it. Grief affects all of us in different ways and so please greave in your own way and be kind to yourself...sending big hugs

Jackoh profile image
Jackoh

So sorry to hear of your loss, even when expected, it doesn't lessen the pain. Much love and prayers to you at this time. Xx Jackie

Chrob profile image
Chrob

So hard a place to be , so sorry to hear this .

Klah profile image
Klah

I am so sorry about the loss of your son. Such tremendous grief. How could anyone make enough cortisol to help with that. You must be devastated. I hope you have the ability and circumstance to do whatever you need to manage at this time. Thoughts and prayers for you๐Ÿ™๐Ÿป If it is necessary to up the prednisone I would do it๐Ÿ’•

enan-illuc profile image
enan-illuc

I am sorry to hear of your loss. No matter how much time we know in advance and prepare, the loss is still very painful. My prayers go with you.

Patience47 profile image
Patience47

So sorry for your loss. You are in my prayers.

Edward

Sandy1947 profile image
Sandy1947

How are you doing? I think about you often and pray you are doing better.

1Purplecrow profile image
1Purplecrowโ€ข in reply toSandy1947

Thank you Sandy. I appreciate the thoughts and prayers of all you kind friends on this forum. Jerri

Orangecrush profile image
Orangecrush

I'm sorry to hear that you have lost your son, it matter what the illness was its still a very hard time for you. My sympathy and thoughts are with you. Give yourself plenty of TLC and take care

1Purplecrow profile image
1Purplecrow

Thank you๐Ÿ™๐Ÿผ

isabella2015 profile image
isabella2015

Dearest purple cow, Iโ€™m so sorry,, sening you healing white light love prayers

1Purplecrow profile image
1Purplecrowโ€ข in reply toisabella2015

Thank you for your kind words. Your support is gratefully received. ๐Ÿ™๐ŸผJerri

PMRinsdca profile image
PMRinsdca

Oh, I am so sorry for your loss! My deepest sympathies and huge hugs go out to you. I am not surprised with your fatigue during this time. Yes, like everyone has said have lots of self-compassion during this time. Rest if you are tired. I have been finding meditation to help me along with listening to Ted Talks. I am sure they have the topic of dealing with grief that may be helpful. I wish you peace and a return of energy and joy in your life. Hugs.

1Purplecrow profile image
1Purplecrow

Thank you for your kindness, Jerri

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