Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2017

The Lighter Side of PMR / GCA - Just a Quick-ish One from Benjamin Towers... ;-)

Well, my Trusty and Dedicated PMR and / or GCA Friends here on a cooler, calmer Autumn Friday night, in the UK at least. As for the south of the USA and...

Well, my Trusty and Dedicated PMR and / or GCA Friends here on a cooler, calmer ...

markbenjamin57

•7 years ago

32 Replies

Scar concealer

I can't remember who was asking about camouflage makeup by I have just come back from John Lewis and Ester Lauder. The consultant laughed that it turned you...

I can't remember who was asking about camouflage makeup by I have just come back...

EdithWales

•7 years ago

2 Replies

Sight loss during sleep

Doctors treating those with suspected GCA often advise the patient to call an ambulance immediately if they suffer sight loss but what happens if sight loss...

Doctors treating those with suspected GCA often advise the patient to call an am...

Nettejames123

•7 years ago

17 Replies

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Am I really expected to drop 9mg?

After having a problem getting 1mg tabs of pred I collected my prescription this morning....56 1mg tablets with the instruction take 1tablet daily with or...

After having a problem getting 1mg tabs of pred I collected my prescription this...

CT-5012

•7 years ago

54 Replies

Accident update

I am home from hospital after wreck, hopefully husband will be coming home in a day or 2. Of course I can't move head or neck because of fracture. Trying to...

I am home from hospital after wreck, hopefully husband will be coming home in a ...

barbthy

•7 years ago

7 Replies

Abdominal Pain

During the 5 years I have had PMR the main areas affected have been neck, shoulders and hip girdle. For the past few weeks I have had a lot of discomfort...

During the 5 years I have had PMR the main areas affected have been neck, should...

FSP25

•7 years ago

12 Replies

Suspected gsa at 32

Hi just joined today. A little about myself I'm 32 and have been having temporal headaches for 3-4 months now with jaw pain ear and neck pain. Constantly been...

Hi just joined today. A little about myself I'm 32 and have been having temporal...

Nav1984

•7 years ago

32 Replies

A year on Prednisolon

I was diagnosed with GCA over a year ago ,having had pains in my head for sometime befor that and one morning I woke up and noticed my vein in my temple had...

I was diagnosed with GCA over a year ago ,having had pains in my head for someti...

HELLSmouth

•7 years ago

5 Replies

Attendance allowance

Hi everyone, I have a question: do any of you in the Uk claim Attendance Allowance whilst suffering from PMR/GCA? Regards Pat

Hi everyone, I have a question: do any of you in the Uk claim Attendance Allowa...

PatB1948

•7 years ago

11 Replies

The Lighter Side of PMR - Update From Benjamin Towers: A Tease Too Far..? :-) :-/

Well, my trusty and thoughtful Partners in Pred - what can I say..? First, my sincere apologies for winding you up ‘Good-n-Proper’, as they say in gangster...

Well, my trusty and thoughtful Partners in Pred - what can I say..? First, my ...

markbenjamin57

•7 years ago

19 Replies

PMR and IBS

I was diagnosed with IBS a short time before the PMR. NOW I'm wondering if the two are connected. Is the IBS a symptom of the PMR? I just down loaded the...

I was diagnosed with IBS a short time before the PMR. NOW I'm wondering if the...

MaryA_

•7 years ago

13 Replies

state of adrenal glands at 10 mg for 4mos

is it possible for my fatigue to be caused by adrenal glands at this stage, or is it because of extra stress i have being going through last few mos

is it possible for my fatigue to be caused by adrenal glands at this stage, or i...

arvine

•7 years ago

2 Replies

tired of being tired

well if you have followed my post, i was started on pred last oct at 40 by gp, rheumy took few mons to believe it was pmr,all to while reducing my pred, and...

well if you have followed my post, i was started on pred last oct at 40 by gp, r...

arvine

•7 years ago

2 Replies

tired

Hi all was diagnosed with PMR 6 years ago don't think I still have it am down to 4 mg pred not in any pain main problem is tiredness. I know that adrenals take...

Hi all was diagnosed with PMR 6 years ago don't think I still have it am down to...

kingharold11

•7 years ago

3 Replies

Life without prednisolone

I stopped the steroids three weeks ago l had been reducing down gradually over months, started in January 2016. was OK at first so I think adrenals working...

I stopped the steroids three weeks ago l had been reducing down gradually over m...

patsy69

•7 years ago

7 Replies

The Lighter Side of PMR - Important Announcement From 'Uncle' MB.. ;-/

Good Evening to all PMR and GCA Survivors, wherever you are in the world. I write to you from ‘Benjamin Towers’: my secluded and heavily-guarded seaside...

Good Evening to all PMR and GCA Survivors, wherever you are in the world. I wr...

markbenjamin57

•7 years ago

53 Replies

Anti-shingles jab

My medical centre are offering anti-shingles jab to 70-78 yr old patients. Anyone know if it is a live or dead vaccine?

My medical centre are offering anti-shingles jab to 70-78 yr old patients. Anyon...

Marcy47

•7 years ago

17 Replies

Pain in temples

Hi sorry - it's me again. I am currently on 10mg and generally doing well (apart from the crazy crazy emotions, leg swelling and some heaviness and a bit if...

Hi sorry - it's me again. I am currently on 10mg and generally doing well (apart...

Slosh

•7 years ago

16 Replies

PMR

Hi , would just like some advice from this wonderful forum . Had PMR for 1yr not and got down to 10mg preds very easily . Since July I have had 2 flare ups. I...

Hi , would just like some advice from this wonderful forum . Had PMR for 1yr not...

KathleenJohnson107

•7 years ago

3 Replies

Exercise

Was diagnosed June and responding well to steroid s and now at 10mg and so far no problems. Do a lot of walking as don't drive and was thinking of joining a...

Was diagnosed June and responding well to steroid s and now at 10mg and so far n...

ali5son

•7 years ago

12 Replies

Illness- worsen due to PMR

Hi- I hope everyone is well and joyful today 😊. I lowered my prednisone from 10 to 7.5 ish, breaking the 10 into 4. I've acquired more aches and pains which I...

Hi- I hope everyone is well and joyful today 😊. I lowered my prednisone from 10...

klairv0yant

•7 years ago

13 Replies

Worried

After what I thought was a 'good' visit to doc on Monday I ended up back there today. Phoned triage nurse for advice re headache and within the hour had seen...

After what I thought was a 'good' visit to doc on Monday I ended up back there t...

Hollyseden

•7 years ago

8 Replies

ON-GOING RESEARCH: We need to help ourselves to help others.

On another thread PMRpro posted an interesting link. It made me think and below is the result. Both of these surveys are continous and both active and used...

On another thread PMRpro posted an interesting link. It made me think and below...

jinasc

•7 years ago

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Will PMR never go away!

Hello everyone, I have had PMR for 9 years. Am now approaching 77 years. I have done all I can to defeat this disease. So much for medics saying it will go...

Hello everyone, I have had PMR for 9 years. Am now approaching 77 years. I have ...

nevagivup

•7 years ago

36 Replies

Scheduling cataract surgery while on high dosage of prednisone

Greetings to all of you. This has been a very stressful few months. I had a GCA flare up while having a mini reunion with 4 dear high school friends in July. I...

Greetings to all of you. This has been a very stressful few months. I had a GCA ...

Joyful13

•7 years ago

11 Replies

How many of us can manage our PMR with pain medications?

I have had some sort of terribly painful autoimmune condition and my muscles for four years now. It sounds like PMR except if I take some supplements or some...

I have had some sort of terribly painful autoimmune condition and my muscles for...

jwb43

•7 years ago

24 Replies

The Lighter Side of PMR - 'MB, What Do You Think About This One?' Reply to JoanJo - and on the Paradoxical Journey of Steroid tapering ;-)

Dear JoanJo / all following this thread First, sincere thanks for your post - and comparing notes. It's what this forum is all about! I'm sorry if this...

Dear JoanJo / all following this thread First, sincere thanks for your post -...

markbenjamin57

•7 years ago

32 Replies

A quick thank you

I read this forum every day. I appreciate the patient and thorough replies to every post, even if a question has been asked many times. To a new PMR/GCA...

I read this forum every day. I appreciate the patient and thorough replies to ev...

cctraveler

•7 years ago

6 Replies

Sulfur and salt

Hello fellow travellers on the way to recovery. I want to share my Discovery of the 'thermen' a swimming pool with water from a source deep in the earth Did...

Hello fellow travellers on the way to recovery. I want to share my Discovery of ...

Zofitmogelijk

•7 years ago

9 Replies

Reducing prednisolone

I was diagnosed with GCA in April 2015. Was treated with different drugs i.e methotrexatete, cyclophosamide , and now colchine, and still not better I have...

I was diagnosed with GCA in April 2015. Was treated with different drugs i.e met...

Ceathrua498

•7 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2017

The Lighter Side of PMR / GCA - Just a Quick-ish One from Benjamin Towers... ;-)

Scar concealer

Sight loss during sleep

Am I really expected to drop 9mg?

Accident update

Abdominal Pain

Suspected gsa at 32

A year on Prednisolon

Attendance allowance

The Lighter Side of PMR - Update From Benjamin Towers: A Tease Too Far..? :-) :-/

PMR and IBS

state of adrenal glands at 10 mg for 4mos

tired of being tired

tired

Life without prednisolone

The Lighter Side of PMR - Important Announcement From 'Uncle' MB.. ;-/

Anti-shingles jab

Pain in temples

PMR

Exercise

Illness- worsen due to PMR

Worried

ON-GOING RESEARCH: We need to help ourselves to help others.

Will PMR never go away!

Scheduling cataract surgery while on high dosage of prednisone

How many of us can manage our PMR with pain medications?

The Lighter Side of PMR - 'MB, What Do You Think About This One?' Reply to JoanJo - and on the Paradoxical Journey of Steroid tapering ;-)

A quick thank you

Sulfur and salt

Reducing prednisolone

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