Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for September 2017

The Real me is still there

I was Diagnosed with PMR in 2014 and started on 15mg of Prednisolone for two weeks, Then up to 20mg which gave me some Relief,Tapered to 9mg Then had a Flare...

I was Diagnosed with PMR in 2014 and started on 15mg of Prednisolone for two wee...

pakien

•7 years ago

6 Replies

Is 1 mg enough

Hi everyone I have been at 6 mg for a month now. I know I had done really well having started on 15mg in February this year. I thought things would settle but...

Hi everyone I have been at 6 mg for a month now. I know I had done really well ...

JulieR2

•7 years ago

23 Replies

Bladder pain

Hi does anybody else have bladder pain ? Apparently it's common with our type of disorder .

Hi does anybody else have bladder pain ? Apparently it's common with our type of...

pammy_hyland

•7 years ago

24 Replies

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Fatty Liver

I would like info for a Fatty Liver .

phyllisskoe

•7 years ago

4 Replies

I need help deciding:

I was diagnosed with PMR last Dec. and am currently on 9.5 mgs (day 1). I live in the USA and am on a Medicare Advantage Plan through my former employer,...

I was diagnosed with PMR last Dec. and am currently on 9.5 mgs (day 1). I live ...

Hindags

•7 years ago

14 Replies

Enan Illuc

Hi I am Enan. I live in Illinois, USA. I am 70 years old and was in good health until I 'joined this club' with GCA and PMR in June of 2016 with a positive...

Hi I am Enan. I live in Illinois, USA. I am 70 years old and was in good health ...

enan-illuc

•7 years ago

11 Replies

The Lighter Side of PMR: ‘Dear Marje..’ - Suggested Blockbuster Letter Template to a Busy GP Practice Manager ;-)

Greetings to You Lot of Polymalingerers and Partners in Pred - whether New, Old, Ancient, Fossilised, or Cryogenically Frozen in Organic Yoghurt (or whatever...

Greetings to You Lot of Polymalingerers and Partners in Pred - whether New, Old,...

markbenjamin57

•7 years ago

82 Replies

PMR for 4 years

Hi all, My name is Sheila and I live in Canada, and was diagnosed with PMR exactly 4 years ago at age 55. I am a nurse, now retired, and had never heard of...

Hi all, My name is Sheila and I live in Canada, and was diagnosed with PMR exac...

Molymath

•7 years ago

12 Replies

Hip pain

Before I see my GP I would like the opinion of the very clever and supportive people on this site. I was diagnosed 2 and a half years ago with PMR and...

Before I see my GP I would like the opinion of the very clever and supportive pe...

margiebell4

•7 years ago

6 Replies

Update

Hi all I haven't been on here for a while, so thought I'd update you. I have now been officially diagnosed with adrenal insufficiency, I take 7mgs of Pred....

Hi all I haven't been on here for a while, so thought I'd update you. I have no...

bowler

•7 years ago

10 Replies

Update

I joined this forum in 2014 when I was diagnosed with PMR in August and GCA in December. I did have a positive TAB in December 2014. You all know the story....

I joined this forum in 2014 when I was diagnosed with PMR in August and GCA in D...

katpat

•7 years ago

4 Replies

The power of stress in PMR

I'm experiencing an amazing thing- I flew to London on Ryanair , determined not to check in any bags or pay for priority boarding.I didn't have airport...

I'm experiencing an amazing thing- I flew to London on Ryanair , determined not ...

Gaijin

•7 years ago

17 Replies

Finally saw Neurologist

Ok so here is the story I have 4 specialists sitting on the fence. Pulmonologist, Rheumatologist, Neurologist and Pathologist. They are not sure that my...

Ok so here is the story I have 4 specialists sitting on the fence. Pulmonologist...

Rowboat

•7 years ago

8 Replies

Bowen therapy flare up - advice please

Hi I decided to try Bowen Therapy, as it was recommended here, and I hoped it might speed up recovery. Ive had PMR for 2 years and gradually reduced to...

Hi I decided to try Bowen Therapy, as it was recommended here, and I hoped it m...

Amanda_iona

•7 years ago

11 Replies

Post Op Looking Forward

I have finally got my new hip but now feel I am having a flare up? Only got home from hospital Wednesday (operation was Maonday 18th). I think it's a flare up...

I have finally got my new hip but now feel I am having a flare up? Only got home...

Estellemac

•7 years ago

23 Replies

Long haul flight

First, a bit of background info. Back in March of this year, I was invited by lovely friends to stay with them for a holiday in Florida. Having lost my husband...

First, a bit of background info. Back in March of this year, I was invited by lo...

Janann25

•7 years ago

5 Replies

Methotrexate

New kid here - diagnosed with PMR May2016. Had a flare Feb./17, had to go back up to 15mg. Pred. The specialist also prescribed Methotrexate, he called it a...

New kid here - diagnosed with PMR May2016. Had a flare Feb./17, had to go back ...

lindaoquilts

•7 years ago

8 Replies

Experiences in Childhood Can Alter Your DNA For The Rest of Your Life..

http://www.sciencealert.com/experiences-in-your-childhood-can-alter-your-dna-and-make-you-prone-to-illness

http://www.sciencealert.com/experiences-in-your-childhood-can-alter-your-dna-and...

sazzyb

•7 years ago

3 Replies

PMR&GCAuk North East Support: Group Meeting. Charity Reg No 1138409.

27 Sep 2017 Starts 1.30pm Area 1 Teesside, S Durham, N Yorks Guest speaker optician John Prouse - The side effects of steroid treatment on the eyes Marton...

27 Sep 2017 Starts 1.30pm Area 1 Teesside, S Durham, N Yorks Guest speaker opt...

jinasc

•7 years ago

4 Replies

PMR blood test results due tomorrow

Hello I'm 72 and until 4 weeks ago was cycling regularly, mountain hiking, swimming and visiting a trainer weekly. I skied 7 weeks last season. Over the last...

Hello I'm 72 and until 4 weeks ago was cycling regularly, mountain hiking, swimm...

Pym1

•7 years ago

13 Replies

When to take medication?

Hi everyone Please could you advise me when to take my medication. I normally take Lansoprazole about 7 - 7.30 am, breakfast about 8am with 5mg Pred,...

Hi everyone Please could you advise me when to take my medication. I normally t...

Marlenec

•7 years ago

7 Replies

EU Guidelines for treatment of GCA

Hi, does anyone have the link to the EU recently published guidelines for the treatment of GCA? If so can you send the link or post it? I have an...

Hi, does anyone have the link to the EU recently published guidelines for the tr...

Tj2017

•7 years ago

5 Replies

How much to increase steroids?

I'm struggling a bit here and would appreciate the advice from you lovely ladies. I had been doing very well on my dsns reduction and had got down to 3.5mg...

I'm struggling a bit here and would appreciate the advice from you lovely ladies...

MaryWR

•7 years ago

9 Replies

Tightness across the chest (NOT a 'hearty')

Hi all, quick question, I have been trying to reduce, as you do - and one of the symptoms I seem to get is a tightness across the chest. A single point pain in...

Hi all, quick question, I have been trying to reduce, as you do - and one of the...

PiersC

•7 years ago

14 Replies

Really depressed

Hi all, I'm really depressed at the moment. I've been on the PMR journey for 3 years and had managed to gradually reduce medication to 1mg when Bam all the...

Hi all, I'm really depressed at the moment. I've been on the PMR journey for 3 ...

Goldielady

•7 years ago

23 Replies

At last a permanent Rheumy -I hope

finally got to see the new man in post today. What a refreshing change. Listened with mounting horror to my experiences so far. Then completely confused me by...

finally got to see the new man in post today. What a refreshing change. Listened...

Tigger6717

•7 years ago

5 Replies

problems

Hi, you have sent me a message saying that only members are allowed to post comments I have been a member for many years. and in any case I had somebody...

Hi, you have sent me a message saying that only members are allowed to post comm...

Kneesup

•7 years ago

1 Reply

Stiff sensation in jaws

Hi again lovely wise people 😇 I've been having this feeling of stiffness in my jaws last couple of days. Kind of at the back teeth area and into jaw. It's not...

Hi again lovely wise people 😇 I've been having this feeling of stiffness in my ...

Allsgrandso

•7 years ago

7 Replies

Trying to get off of prednisone

Hi Just discovered this group. I was diagnosed with PMR March 2017. Doctor started me on 20mg of pred. Now it's September and I've weaned down to 9mg and in...

Hi Just discovered this group. I was diagnosed with PMR March 2017. Doctor sta...

Judyp1203

•7 years ago

16 Replies

Aching eyes

I wonder if anyone else with a diagnosis of PMR has experienced a feeling of strain behind their eyes? There is no significant headache and my vision is clear,...

I wonder if anyone else with a diagnosis of PMR has experienced a feeling of str...

Zebedee44

•7 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2017

The Real me is still there

Is 1 mg enough

Bladder pain

Fatty Liver

I need help deciding:

Enan Illuc

The Lighter Side of PMR: ‘Dear Marje..’ - Suggested Blockbuster Letter Template to a Busy GP Practice Manager ;-)

PMR for 4 years

Hip pain

Update

Update

The power of stress in PMR

Finally saw Neurologist

Bowen therapy flare up - advice please

Post Op Looking Forward

Long haul flight

Methotrexate

Experiences in Childhood Can Alter Your DNA For The Rest of Your Life..

PMR&GCAuk North East Support: Group Meeting. Charity Reg No 1138409.

PMR blood test results due tomorrow

When to take medication?

EU Guidelines for treatment of GCA

How much to increase steroids?

Tightness across the chest (NOT a 'hearty')

Really depressed

At last a permanent Rheumy -I hope

problems

Stiff sensation in jaws

Trying to get off of prednisone

Aching eyes

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