EU Guidelines for treatment of GCA: Hi, does anyone... - PMRGCAuk

PMRGCAuk

20,262 members37,907 posts

EU Guidelines for treatment of GCA

Tj2017 profile image
5 Replies

Hi, does anyone have the link to the EU recently published guidelines for the treatment of GCA? If so can you send the link or post it? I have an appointment with a leading expert in GCA at Stanford today and would like to take a printout. Thanks in advance.

TJ

Written by
Tj2017 profile image
Tj2017
To view profiles and participate in discussions please or .
5 Replies
jinasc profile image
jinasc

As far as I am aware, they have not been published yet, they are at the BSR awaiting clearance. You could try the Mayo as they may have been issued in the USA.

I did look on the internet for them, but could not find anything except the current ones.

This link takes you to the current ones, although you probably have a copy.

pmr-gca-northeast.org.uk/as...

Tj2017 profile image
Tj2017 in reply to jinasc

Perfect. Thank you.

PMRpro profile image
PMRproAmbassador

If he's an expert he should know about them - they are jointly issued by ACR/EULAR.

There is a presentation of the main points here:

keepandshare.com/doc/819279...

which Prof Dasgupta gave at the Scottish conference in September 2016. There is a bit about TB (if I remember rightly) in the middle - heaven knows why...

Tj2017 profile image
Tj2017 in reply to PMRpro

Thanks PMR pro. The document was more for myself due to pred fog. I get easily confused and don't remember things as well. The reference to TB maybe related to the fact in the US we are seeing TB resurface in patients taking prednisone. I had to have a to test prior to starting the prednisone.

The appointment went well. I am still processing my thoughts and will post an update in a few days.

Best,

TJ

Polywotsit profile image
PolywotsitPMRGCAuk team member

Hi jinasc and TJ - the current BSR guidelines are also available for download in Resources on the PMRGCAuk website - pmrgca.co.uk/downloads/2/10

The ones we are waiting for are the joint ACR (American College of Rheumatologists) and EULAR (European League Against Rheumatism) ones, which will of course be international.

We're still waiting for the final version of the new guidelines to be published - there seems to be a bit of a technical sticking point. Watch this space!

You may also like...

Nice guidelines for GCA treatment

those of you who don’t mind reading scientific stuff might like to look at the NICE guidelines...

Stelara/ustekinumab for GCA treatment

that it may actually force GCA into remission in about a year's time. Does anyone else receive this...

GCA Treatment and Wine

alternative treatments. Are any of you fellow \\"sufferers\\" wine drinkers? Have you had to...

GCA/PMR and spa treatments

any of these therapies would be greatly appreciated. Thanking you all in advance.

Emergency treatment for GCA blindness

stuff. Any assistance would be greatly appreciated, Many thanks in advance Ben