First, a bit of background info. Back in March of this year, I was invited by lovely friends to stay with them for a holiday in Florida. Having lost my husband last year - and never having been to America - I was so excited. But then, in May this year I was diagnosed with PMR and a month later with possible GCA. So, as I'm sure you'll all know, the treatment for GCA is started anyway. My starting dose was 40mg and, during August I was able to reduce without problem to 30mg. The next reduction was to 25mg during September - my own doctor is happy to prescribe the 1mg tablets as well as 5mg so I can reduce at my own pace - but after 4 days at 29mg, I had some head pain. I contacted my rheumatologist and she advised going back to 35mg for 4 weeks and then try reducing again. So, my concern now is whether or not I should go on holiday - I'm due to fly on 22 October (being treated to Business Class!! 😊) I intend contacting my rheumatologist next week to get her advice - well actually, I don't speak with her, there are two very good support nurses who are very helpful and phone me back with the answers - but I would really appreciate hearing from anyone who has made a long haul flight whilst taking 30mg Pred.
Sorry for the long, rambling post!!!