finally got to see the new man in post today. What a refreshing change. Listened with mounting horror to my experiences so far. Then completely confused me by saying he thought that I might just have Fibromyalgia as well as perhaps GCA , but instead of PMR. Anyway now I have one empty arm as he has done loads of blood tests, to try and confirm what I do or don't have - can't wait for the answers. Either way I still have to get down from 30 mg Pred. and so far my body has not thought this a good idea. So another tapering scheme but with permission to try Dorset Lady's if I struggle with his plan.
The only good thing to come out of all this so far is that I have lost about 2 Stone in weight, and that had it's drawbacks because it isn't helpful if your pyjama bottoms get to the bottom of the stairs before you do. Oh and the other good thing is that I am officially allowed to come off Alendronic Acid as my DEXA showed that I don't have any significant bone loss - huge sigh of relief.
Onwards and sideways I guess. I am feeling as though this is some weird version of the Crystal Maze - never quite sure what the next challenge will be, but quite sure that if I don't get over it quickly I'll get locked in.