Good evening all,
I hope you are all having a good evening, just thought I'd touch base as I went and saw Dr Rod Hughes again privately at Chertsey after my disastrous appointment at my local hospital which put me back to where I was 6 months ago and left me feeling very despondent.
He agreed that the Rheumy I saw should be ignored (in not so nice words lol). However I have an interesting update - armed with all my scan results and blood tests, a long list of what's been happening since I saw him last, he now thinks it's very possible that I have Takayasu Arteritis!
So next steps is to get my GP to send him an email to get on his NHS list and fast tracked on to see him and get a PET Scan arranged ASAP. Then likely to be on methotrexate....I guess time will tell!
Sounds a bit like something I would have ordered at Wagamamas if it wasn't so full of carbs and salt...
Anyone got any experience?