Hi, not posted for awhile as been ok. Started on 40 mg 17 months ago with GCA. Had a couple of hiccups but as told by my rheumatologist in March keep reducing 1 mg per month. I was down to 5mg for a couple of weeks and struggling a bit - tired, a few head tingles and neck ache but soldiered on. However went for routine appt and saw different rheumatologist (same dept) who seemed horrified I had been told to reduce 1 mg per month and said I would definitely get 'it' back again. Told me to keep on 5 for another 6 months and also do 2 days on 10mg. It was as if he jinxed me as that night started with headache. I have been on 10 for 4 days and still not settled. How long should I stay on 10 or should it be more and do I reduce to 5 slowly again?
Also I had a dexa scan in May (I asked for one after reading on here about alendronic acid. The same consultant was very reluctant to give me results just said my spine was slightly below average so should be taking it. I am feeling very deflated after my visit and would appreciate your help.