Swollen abdomen and fluid build up : Could this be... - PMRGCAuk

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Swollen abdomen and fluid build up

Sheribrim profile image
24 Replies

Could this be polymyalgia related?

My abdomen swells or fills up with liquid. I was constipated but not now. Four litres drained off in hospital. Why? Is it connected to pmg possibly.

After several tests we have drawn blank.anyone have any ideas?even by suggested but nothing else.

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Sheribrim profile image
Sheribrim
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24 Replies
PMRpro profile image
PMRproAmbassador

If you have PMR symptoms in combination with that sort of problem I really think your doctors should be investigating you very thoroughly. PMR can be a symptom of some types of cancer so I do hope they are not missing something. I'm sorry to have to say this - but better to bear it in mind than not.

Baileyw06 profile image
Baileyw06 in reply to PMRpro

What types if cancer?

HeronNS profile image
HeronNS in reply to Baileyw06

If you look up polymyalgia or PMR differential diagnosis you will find some information, but please bear in mind that the presentation of PMR like symptoms with cancer is very rare.

Sheribrim profile image
Sheribrim in reply to PMRpro

Thank you. I see specialist first thing tomorrow morning. Could you advise me on possible types as they don't seem very clued up on this illness and I am losing weight.

HeronNS profile image
HeronNS in reply to Sheribrim

Here is one site, but please don't stress yourself too much although it's best to be investigated, safe rather than sorry.

uptodate.com/contents/clini...

ValFF53 profile image
ValFF53 in reply to Sheribrim

Hello Sheribrim

I am sorry to hear of your situation. You must be very worried as I would be, too.

I am a qualified nurse and I do not think that your swollen abdomen is linked to PMR. It must have been very swollen if four litres was drained. You also mention weight loss but not how much over how long. It may be that you have some form of liver disease or an abdominal cancer.

I am pleased that you are seeing a specialist today. It may be the start of a number of investigations before you are given a diagnosis which will be a stressful time whilst you are waiting for the results.

Please let us know how you get on.

With warmest wishes

Valerie

Sheribrim profile image
Sheribrim in reply to ValFF53

Thank you Valerie. I felt a lump in groin area size of half a pear when last drained , I will mention again when I see specialist today..

Sheribrim profile image
Sheribrim in reply to ValFF53

Being tested today for ovarian cancer so we will see thank you for your help

Sheribrim profile image
Sheribrim in reply to ValFF53

They are looking for ovarian cancer now thank you for your reply.

PMRpro profile image
PMRproAmbassador in reply to Sheribrim

Heron has given the site I'd have linked to if I hadn't given up for the day - sorry you had to wait. I'm at a conference so limited time in the evening this week.

The ascites is definitely not PMR- related as Val has said and it is that I'm most concerned about establishing a cause.

Sheribrim profile image
Sheribrim in reply to PMRpro

Thank you so much for your support. Ovarian cancer now being investigated

Sheribrim profile image
Sheribrim in reply to PMRpro

About to be tested for ovarian cancer so we go on another journey thanks pmrpro

in reply to Sheribrim

Hope all goes ok and you get full support. good wishes 🌻🌻

PMRpro profile image
PMRproAmbassador in reply to Sheribrim

All the very best xxxxxxxxxxxxxx

Klah profile image
Klah in reply to Sheribrim

Hope you can get to the bottom of this...and hope for the best. Come back to the forum and let us know how you are doing. Try to find some distractions...and rest. Best~💕💕

SheffieldJane profile image
SheffieldJane

How worrying for you Sheribum! I take it that they have thoroughly checked your heart? It's just that a friend of mine had these sort of symptoms because her heart was working inefficiently.

I dare say that the medics will keep on investigating until they get to the bottom of this. Have you had PMR diagnosed? Are you on Prednisalone?

Let us know how you get on. Best wishes Jane

Sheribrim profile image
Sheribrim in reply to SheffieldJane

Yes diagnosed and about to receive plan of treatment at last . I have ovarian or peritoneal cancer (treatment same )not what I wanted to hear but there you are .

PMRpro profile image
PMRproAmbassador in reply to Sheribrim

I'm so sorry that my suspicion was right - I hate being right :-(

All the very best and do come and tell us how you are getting on.

Big hugs. xxxxx

Sheribrim profile image
Sheribrim in reply to PMRpro

Well I have a plan!!

I'm on the rocky road. Abdomen had to be drained twice due to build up of fluid. Protecting the bad guy I suppose!!!

Now I have three sessions of chemo which are three weeks apart and then if they work an operation will follow🏖. I'm sure it's going to become more difficult but I'm assured that once chemo starts I will not lose hair and will feel much better. So Thursday it is. Just keeping in touch as you asked pmrpro xx

PMRpro profile image
PMRproAmbassador in reply to Sheribrim

Thank you - all the very best

HeronNS profile image
HeronNS in reply to Sheribrim

It's good you are getting the right treatment now. Hope you feel better soon. All the best.

Cinka profile image
Cinka in reply to Sheribrim

Thinking of you, Sheribrim, that all goes well.

Love and prayers for a full recovery. xxx

SheffieldJane profile image
SheffieldJane

There must be a certain amount of relief in at last having a diagnosis and a plan for your treatment. I really hope everything goes well for you. 🌸

sazzyb profile image
sazzyb

Thinking of you Sheribrim, positive vibes coming your way! xx

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