Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2017

Tapering pains

I am a quite active (gardening, wood-cutting, etc.) 77 year old male. I've had PMR for close to three years. I've been tapering dead slowly and am now down...

I am a quite active (gardening, wood-cutting, etc.) 77 year old male. I've had ...

nessonm

•7 years ago

7 Replies

Actemra

Haven't posted in a while, been sick, but try to read post almost every day. Ask this question months ago if anyone is on at Actemra now wondering how they...

Haven't posted in a while, been sick, but try to read post almost every day. As...

casse

•7 years ago

3 Replies

Hot knees!!!!

Does anyone get hot knees?? Especially at night? They wake me up and drive me mad! They're not sore, just hot! I usually end up slathering them in cool arnica...

Does anyone get hot knees?? Especially at night? They wake me up and drive me ma...

altywhite

•7 years ago

4 Replies

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GCA features on 'Trust Me, I'm a Doctor'

So exciting! Here's a link to the BBC clip from last week's 'Trust Me, I'm a Doctor, in which Dr Saleyha Ahsan comes to our AGM and learns from people with...

So exciting! Here's a link to the BBC clip from last week's 'Trust Me, I'm a Doc...

Polywotsit

PMRGCAuk team member•7 years ago

2 Replies

Risks associated with taking PPIs

I thought perhaps you would like to read this article about the use of PPIs. (I've used this link as it is "free-to-air")...

I thought perhaps you would like to read this article about the use of PPIs. (I'...

PMRpro

Ambassador•7 years ago

9 Replies

Night/day sweats a sequel

I had forgotten that I had this amazing towel. http://amzn.to/2lDpXbF Bought one a couple of years ago for OH and then one for me. It works really well and I...

I had forgotten that I had this amazing towel. http://amzn.to/2lDpXbF Bought one...

IdasMum

•7 years ago

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Adrenals or relapse

Morning All I hope you all had a lovely weekend. A query please, been on preds since June 2015 (PMR/GCA) now first week at 8.5 mgs. Felt really strange this...

Morning All I hope you all had a lovely weekend. A query please, been on preds s...

lesley2015

•7 years ago

49 Replies

Dolo cold and dolo 650

I had cold.By miss I took dolo 650 instead of dolo cold and now I haven't recovered. So can I take dolo cold now. (1st tablet taken at 1:00pm ) can I take the...

I had cold.By miss I took dolo 650 instead of dolo cold and now I haven't recove...

Sumukh

•7 years ago

2 Replies

Prone to catching every virus and infection going.

Has anyone else noticed that they catch everything they come in contact with? My grandson comes home from nursery with a runny nose more often than not and...

Has anyone else noticed that they catch everything they come in contact with? My...

SheffieldJane

•7 years ago

9 Replies

Do I restart prednisone but at what dose?

Hi have managed to come off pred since September last year with no discomfort. Am now experiencing pain again in shoulders and arms, struggling to lift arms...

Hi have managed to come off pred since September last year with no discomfort. A...

Sisterj

•7 years ago

17 Replies

In a muddle Dorset and Pro help..or anyone.

Saw a different gp on Friday 7th as, steroid brain caused me to miss my appointment earlier that week. I had reduced steroids from 15 to 6 over 9 months. Had...

Saw a different gp on Friday 7th as, steroid brain caused me to miss my appointm...

Stroppymoo

•7 years ago

7 Replies

PMR Aching again! Should i be worried?

Sorry to be such a worrier but I'm new to this and don't know what to expect when reducing pred dose. I've started to taper from 20mg to 15mg after three...

Sorry to be such a worrier but I'm new to this and don't know what to expect wh...

Zebedee44

•7 years ago

22 Replies

new pain and hurting right hip, groin

well, now something else, along with right shoulder unexplained pain, last few days,started in right groin on and off, now moved around top of leg and right...

well, now something else, along with right shoulder unexplained pain, last few d...

arvine

•7 years ago

17 Replies

Thudding in ear?

Hi All. I have had a flare up of pain this week so put myself back up to 15 mg for a couple of days and thank goodness today the pain is less today so going...

Hi All. I have had a flare up of pain this week so put myself back up to 15 mg f...

SusyTe

•7 years ago

15 Replies

Fatty liver with Leflunomide

Has anyone else found they have fatty liver, Gp says it's all the weight I have put on since taking steroids, have been on them 18 mths and started taking...

Has anyone else found they have fatty liver, Gp says it's all the weight I have ...

valrene

•7 years ago

41 Replies

help , thinning hair on prednisone since oct,

i have heard hat a lot of people on prednisone experience hair loss, thinning etc, this has started to happen to me now,for last month, been on prednisone...

i have heard hat a lot of people on prednisone experience hair loss, thinning et...

arvine

•7 years ago

11 Replies

OUT OF BREATH CONTINUED

I WENT TO THE CARDIOLOGIST AND THEY WILL DO AN ECHO CARDIOGRAM ON 2-22...HE THINKS IT MAY BE THE PREDNISONE BUT IS NOT SURE MY HEART IS NOW SKIPPING A...

I WENT TO THE CARDIOLOGIST AND THEY WILL DO AN ECHO CARDIOGRAM ON 2-22...HE THIN...

jevuki

•7 years ago

14 Replies

Raised inflammatory marks on blood tests

Hi, I'm a 39 year old mum. I've been ill since October 2016 with chest infections, viral and bacterial infections, colds and a long lasting irritating cough...

Hi, I'm a 39 year old mum. I've been ill since October 2016 with chest infectio...

Hidden

•7 years ago

5 Replies

Levaquin (levofloxacin) for bronchitis

Not been on for a while but have been progressing well with the PMR - now on 1.25mg daily. Just been to my local Urgencias here in Spain as I have developed a...

Not been on for a while but have been progressing well with the PMR - now on 1.2...

golflady17

•7 years ago

15 Replies

On being an idiot

So we've been buried under snow this week, two storms with a day in between. Which of course results in much shovelling for homeowners, and I've certainly...

So we've been buried under snow this week, two storms with a day in between. Wh...

HeronNS

•7 years ago

16 Replies

The good and bad days of PMR

Hi Everyone, I am holding steady on 15MG after a recent flare since Feb 8th where I had to go back to original starting dose. It took a week to adjust to the...

Hi Everyone, I am holding steady on 15MG after a recent flare since Feb 8th wher...

Marie1479

•7 years ago

9 Replies

not happy with unknown

well i just had appt with my rheumy, whom ive seen now, i think 4 times since oct 25, gp diagnosed me with pmr, oct 12, without doing any base blood work at...

well i just had appt with my rheumy, whom ive seen now, i think 4 times since oc...

arvine

•7 years ago

11 Replies

So many questions

Tomorrow I have my second visit to my GP since he started me on prednisolone three weeks ago, after blood tests and symptoms indicated PMR. I had more bloods...

Tomorrow I have my second visit to my GP since he started me on prednisolone thr...

Zebedee44

•7 years ago

22 Replies

Did you change your way of preparing and eating food?

I wonder, as so many of you live with GCA/PMR for a longer period of time, how this influenced your way to nourish your body? Did you change the food you eat?...

I wonder, as so many of you live with GCA/PMR for a longer period of time, how t...

Akino

•7 years ago

26 Replies

Be mindful not to overdo, I've learned the hard way I think.

Reminder to all: don't forget about the Spoon Theory. It's easy to forget. Thinking and sending healing wishes to you all.

Reminder to all: don't forget about the Spoon Theory. It's easy to forget. Thi...

mikldiamond

•7 years ago

7 Replies

What is significance of CRP when tapering?

Not surprisingly I'm finding this forum to be way more helpful than the medical community. Thank you all for your support. When I was diagnosed with PMR in...

Not surprisingly I'm finding this forum to be way more helpful than the medical ...

SueQ1944

•7 years ago

4 Replies

GCA on BBC News site

Some good coverage of GCA (and PMR) on the BBC News website: http://www.bbc.co.uk/news/health-38983990

Some good coverage of GCA (and PMR) on the BBC News website: http://www.bbc.co....

CloudGazer6

•7 years ago

14 Replies

How do you describe fatique?

Hi, today is the first day of taking 5 mg less Prednisone, from 45 mg to 40 mg. I experienced a body sensation today that was so strong I could not do anything...

Hi, today is the first day of taking 5 mg less Prednisone, from 45 mg to 40 mg. ...

Akino

•7 years ago

45 Replies

Night sweats/overheating/bloodsugar

How do you cope with these? I have made some much needed changes to our bedding, removing the king size winter duvet and replacing with a winter double which...

How do you cope with these? I have made some much needed changes to our beddin...

IdasMum

•7 years ago

19 Replies

New here

Good morning all, my name is Monika, I'm German and live in BC, Canada. I'm 67 years old and on Prednisone for 29 days with now 40 mg tapering down. First I...

Good morning all, my name is Monika, I'm German and live in BC, Canada. I'm 67 y...

Akino

•7 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2017

Tapering pains

Actemra

Hot knees!!!!

GCA features on 'Trust Me, I'm a Doctor'

Risks associated with taking PPIs

Night/day sweats a sequel

Adrenals or relapse

Dolo cold and dolo 650

Prone to catching every virus and infection going.

Do I restart prednisone but at what dose?

In a muddle Dorset and Pro help..or anyone.

PMR Aching again! Should i be worried?

new pain and hurting right hip, groin

Thudding in ear?

Fatty liver with Leflunomide

help , thinning hair on prednisone since oct,

OUT OF BREATH CONTINUED

Raised inflammatory marks on blood tests

Levaquin (levofloxacin) for bronchitis

On being an idiot

The good and bad days of PMR

not happy with unknown

So many questions

Did you change your way of preparing and eating food?

Be mindful not to overdo, I've learned the hard way I think.

What is significance of CRP when tapering?

GCA on BBC News site

How do you describe fatique?

Night sweats/overheating/bloodsugar

New here

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