well i just had appt with my rheumy, whom ive seen now, i think 4 times since oct 25, gp diagnosed me with pmr, oct 12, without doing any base blood work at that time, put me on 40mg pred immediately that day,relief from all symptons within hrs, the usual, couldnt raise arms, get out of bed,buttock and hamstring pain etc, then decreased down to 20 mg nov 1, between gp and rheumy, previous in sept gp had done ultrasound and xray on shoulder, right one was the worst, abdominal ultrasound, external and internal, at that time had blood show up in urine, had cystoscopy done, all clear for tumors nobody knows what caused that to happen, anyway, was on 20 from nov1 to jan 18, at which time rheumy reduced me to 17.5 as symptons seemed under control for mostpart, although each morning right shoulder still some pain and discomfort for few hrs each day, on and off some butt hamstring discomfort, but greatly reduced, had few bad days, maybe caused from overdoing etc, and thing is, had back issues prior to all of this, mri in june showed herniated disk, stenosis, degenerative etc, now rheumy was never totally convinced i had pmr, from begining, as no baseline bloodwork done initially by gp, so the pred i was on for 2 wks before i ever saw her, she said clouded everthing,. The point is, just saw her past tuesday, told her had few bad days, but sometimes on awakening, when first get up, shoulder seemed pretty good, then within half hr, pain started, stiffness etc, right off the bat, she said, then that pain was not pmr, also, moved my shoulder and arm around, this was about noontime, and said range of motion good, pain not from pmr, says recommending pain management dr, and agrees with visit to back specialist for back issues. I asked what is causing these symptons i,m having, pain right shoulder,in mornings mostly, sometimes last whole day, her answer was "i don,t know" need to see pain management dr . This statement has left me frustrated, stressed and worried, why can,t anybody tell me what is causing all this pain im having, not from arthritis gp says, not rotator cuff, calcification reduced to what was in shoulder, i just feel neither gp or rheumy getting to answers for me, and is stressing me out mmore, meanwhile have to stay on pred and reduce as normal to wean off which will take a long time as you all know,blood pressure lower than ever been, apparently markers lower know, although wbc still up, apparently from pred, sorry for long story, but so upset and frustrated with what seems like they don,t know what is wrong with me, although still treating me for pmr ? i don, t know if anyone has any advice for me, and i have read so much on this and other forums, so confusing, please help,oh btw, just had physical 2 weeks ago, all other bloodwork good, no blood in urine any longer ,heart, lungs, etc all ok ?