Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,340 members • 38,113 posts

All posts for February 2017

This will get the star for brainfog for sure.

If it wasn't true, it might even be funny. 😏 But when I share these things it helps me realize they are not as desperate as it feels. As you know, I've been...

If it wasn't true, it might even be funny. 😏 But when I share these things it h...

Zacsmimi

•7 years ago

35 Replies

The Lighter Side: ‘Janet and John’ - PMR and the New Rheumatologist.. ;-)

Janet and John were enjoying their secure, suburban retirement dream. Retired from their respective careers in Accounts Administration and Sales Management,...

Janet and John were enjoying their secure, suburban retirement dream. Retired f...

markbenjamin57

•7 years ago

49 Replies

What do you do to get yourself going?

Hi, I'm on day 37 with still a higher dosage of Prednisone for suspected GCA. (40 mg) It dawns on me what an endless and deeply life changing procedure this...

Hi, I'm on day 37 with still a higher dosage of Prednisone for suspected GCA. (4...

Akino

•7 years ago

30 Replies

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Reduction of Steroids

Hello Everyone. Firstly, I would like to say what a fantastic forum this is. The support is phenomenal. I wrote on here a short while ago having been recently...

Hello Everyone. Firstly, I would like to say what a fantastic forum this is. The...

ValFF53

•7 years ago

28 Replies

Its back!!

Hi, my wife 69yrs had pmr last year for 6 month ,steroids did not help , bloods did not confirm diagnosis.Dr not sure if its pmr. Exact same time of year as...

Hi, my wife 69yrs had pmr last year for 6 month ,steroids did not help , bloods ...

Jardinero

•7 years ago

4 Replies

Is it PMR, Old Age or what?

Hi, haven’t posted for a long time, but since I get no real answers from my Rheumatologist, thought I might get some guidance here. My problems started last...

Hi, haven’t posted for a long time, but since I get no real answers from my Rheu...

Dinty123

•7 years ago

13 Replies

Just diagnosed and feeling fed up

Hi I am wondering if anyone can give me some advice about work. I have just been diagnosed and started on the standard treatment. I have a full time job lots...

Hi I am wondering if anyone can give me some advice about work. I have just been...

JulieR2

•7 years ago

19 Replies

unanswered questions since being diagnosed with pmr

hello everyone, well, i,m sure you have seen my comments re history of likely pmr diagnosis since oct 2016, not confirmed , but given pred, high dose to start...

hello everyone, well, i,m sure you have seen my comments re history of likely pm...

arvine

•7 years ago

1 Reply

PMR or OA?

I was diagnosed with PMR just over 4 years ago. I am 70 and retired 2 years ago. Pred worked well for me, the odd flare always controlled by increasing Pred to...

I was diagnosed with PMR just over 4 years ago. I am 70 and retired 2 years ago....

FSP25

•7 years ago

19 Replies

Increasing steroids

Just wondering whether there is any connection, I ve been taking Prednisone down to 5mg daily. So far so good (almost a year), and then suddenly two or three...

Just wondering whether there is any connection, I ve been taking Prednisone down...

hola777

•7 years ago

2 Replies

GCA FLAREUP

I recently started a flare up with GCA. I have been off the Actemra of which I had monthly IV infusions for 10 months. I stopped the Actemra in October. During...

I recently started a flare up with GCA. I have been off the Actemra of which I h...

Joyful13

•7 years ago

7 Replies

Misdiagnosis and confused

hi bit of a long story but in jan/feb 2016 noticed that I was having trouble lifting my feet to put my shoes on get dressed etc and was experiencing muscle...

hi bit of a long story but in jan/feb 2016 noticed that I was having trouble lif...

Sutony57

•7 years ago

27 Replies

Dropping the amount of prednisone

Have been following this site with interest for some time now as to how each one progresses. I am down to 9mg from 10mg of prednisone last 10% drop. Is this...

Have been following this site with interest for some time now as to how each one...

Zanthy

•7 years ago

17 Replies

One Year Progress and Exersise.

Greetings to you All, I haven’t made any contributions to the forum for a long time so thaought as I am approaching my year anniversary it might be good to...

Greetings to you All, I haven’t made any contributions to the forum for a long ...

birdwatcher

•7 years ago

14 Replies

New to this site

Hi everyone, I'm new here but have been reading some posts since I was diagnosed with PMR September 2016. My GP diagnosed PMR through symptoms and blood...

Hi everyone, I'm new here but have been reading some posts since I was diagnose...

Marlenec

•7 years ago

34 Replies

PMR

Hi, I'm new and I have just been diagnosed with Polymyalgia Rheumatica and have started a course of Prednisolone, 15mg as well as continuing taking...

Hi, I'm new and I have just been diagnosed with Polymyalgia Rheumatica and have...

rose1962

•7 years ago

7 Replies

GCA and appointment with Das Gupta

Travelled two hours to Southend to see Professor Das Gupta. Although I had reminded my rheumys secretary to send all my scans and notes weeks ago to him...

Travelled two hours to Southend to see Professor Das Gupta. Although I had remin...

christine2715

•7 years ago

4 Replies

Re restless legs and glaucom

To Zebedee & Cobnut I have had glaucoma for years and after initial laser treatment reducing the pressures from in the 20s to the teens now put in drops of...

To Zebedee & Cobnut I have had glaucoma for years and after initial laser treat...

Gillymar

•7 years ago

1 Reply

lowering dosage of prednisone 3 weeks before trip

i am wondering if anyone has struggled with this, i have now been lowered from 40 mg e started in oct 2016 to currently 17.5 mg since jan 18, i was at 20 mg...

i am wondering if anyone has struggled with this, i have now been lowered from 4...

arvine

•7 years ago

4 Replies

Temporal artery biopsy

This Friday 24 Feb. I am to have a left sided temporal artery biopsy and would like to know how many or if anyone had facial nerve damage after the procedure?

This Friday 24 Feb. I am to have a left sided temporal artery biopsy and would l...

suracon

•7 years ago

15 Replies

New Here and relieved to have found such a great community

Hi, I'm new here - just stumbled on the site while trying to figure out something about my sight. For the last three years I've had awful problems with my...

Hi, I'm new here - just stumbled on the site while trying to figure out somethin...

allwritemel1967

•7 years ago

34 Replies

Fracture

Morning to all .I was diagnosed with GCA in October and at the same time syatica was in a lot of pain .On the 24th December my spine fractured had MRI found I...

Morning to all .I was diagnosed with GCA in October and at the same time syatica...

Jeanmh

•7 years ago

4 Replies

Picture This!!!

Remember I was moving..... Pouring rain packing it all into elevator going down 14 stories... out to the wating Van.. Daughter got stuck working so was late...

Remember I was moving..... Pouring rain packing it all into elevator going down ...

Hidden

•7 years ago

15 Replies

Restless legs and all over restless syndrome

Well I can honestly say I've never had this feeling before. That is, Ive had restless legs at night, but I've never before felt an all over frantic...

Well I can honestly say I've never had this feeling before. That is, Ive had res...

Zebedee44

•7 years ago

21 Replies

Gut microbiome and immune disease????

My friend over on the lupus forum posted this today: https://www.sciencedaily.com/releases/2017/02/170216132428.htm Wonder if we'll live long enough to see the...

My friend over on the lupus forum posted this today: https://www.sciencedaily.co...

PMRpro

Ambassador•7 years ago

38 Replies

Another fracture?

Have been feeling really well,best I've been in two years since onslaught of GCA. Then wham got up this morning and couldn't walk in loads of pain,feels very...

Have been feeling really well,best I've been in two years since onslaught of GCA...

jeannette65

•7 years ago

8 Replies

Advice

Hi, I am 57 and, up until last year, have had good health. About this time last year, I noticed that I had lost a lot of strength, and that after about 4pm I...

Hi, I am 57 and, up until last year, have had good health. About this time last ...

Hidden

•7 years ago

5 Replies

Absorbing pred

I have been splitting my dose of pred for some months now and find it very effective. Take 7 at night and balance at breakfast. If I only take 5mg I'm...

I have been splitting my dose of pred for some months now and find it very effec...

Lochy

•7 years ago

3 Replies

From Cobnut Steroid induced glaucoma

I have steroid induced glaucoma and put drops in each eye at night. These are called Lumigan and when I went to see the eye specialist he told me that they...

I have steroid induced glaucoma and put drops in each eye at night. These are ca...

Cobnut

•7 years ago

5 Replies

Alternating Prednisone days for better immunity

I have tried prednisone 3 times and each time after 7 days I got a nasty flu with vomiting...and stopped the medicine. I understand about immunity suppression...

I have tried prednisone 3 times and each time after 7 days I got a nasty flu wit...

PeterRF

•7 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2017

This will get the star for brainfog for sure.

The Lighter Side: ‘Janet and John’ - PMR and the New Rheumatologist.. ;-)

What do you do to get yourself going?

Reduction of Steroids

Its back!!

Is it PMR, Old Age or what?

Just diagnosed and feeling fed up

unanswered questions since being diagnosed with pmr

PMR or OA?

Increasing steroids

GCA FLAREUP

Misdiagnosis and confused

Dropping the amount of prednisone

One Year Progress and Exersise.

New to this site

PMR

GCA and appointment with Das Gupta

Re restless legs and glaucom

lowering dosage of prednisone 3 weeks before trip

Temporal artery biopsy

New Here and relieved to have found such a great community

Fracture

Picture This!!!

Restless legs and all over restless syndrome

Gut microbiome and immune disease????

Another fracture?

Advice

Absorbing pred

From Cobnut Steroid induced glaucoma

Alternating Prednisone days for better immunity

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