Tomorrow I have my second visit to my GP since he started me on prednisolone three weeks ago, after blood tests and symptoms indicated PMR. I had more bloods taken yesterday so hopefully we will see some improvements and know we are moving in the right direction.
My head is so full of questions and anxiety about the condition and its implications to my life and like many of the people on this site I am hugely comforted by the wealth of understanding and support to be found here. I have been reading Kate's Gilbert's book (which I find very readable) and trying to learn about the condition, it's treatment , exercise, diet regime etc, trying to see how I can continue to do the things I love.
I am currently fighting a battle with the Department of Work and Pensions for Personal Independence Payment, having been out of work and on ESA for two years. The stress Has most definitely played a part in aggravating the PMR. My limited resources prevent me from being able to pursue some of the suggested remedies, like aloe Vera, organic products, supplements. Can anyone help advise me of any additional help I can ask for or qualify for. I am not a scrounger, like I have been made to feel by the system I am forced to turn to for help, I expected to retire this year, redundancy came too soon
I have been lucky with my GP here in Wales, he has been very supportive through my recent hell, but it will probabaly be months before I see a Rheumatologist, or get a DEXA scan, or even a confirmed diagnosis.
I hope there are people near me I can meet up with for support and advice in due course, meanwhile all on line info would be very welcome.
It's 6am and I am buzzing with worry about my appointment and the things I need to remember to ask. The gp should give me some steroid user I.d card, is that right, but can I get a blue badge for my car for example?
Hot flushes and sleeplessness were part on my menopause I thought, now they seem here to stay!!! Hey ho!
Chrissie (aka Zebedee)