help , thinning hair on prednisone since oct, - PMRGCAuk

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help , thinning hair on prednisone since oct,

arvine profile image
11 Replies

i have heard hat a lot of people on prednisone experience hair loss, thinning etc, this has started to happen to me now,for last month, been on prednisone since oct 12 2016, started at 40, now down to 17.5, and will be on that dose at least another month, what can we do if anything about this hair loss, i have always had thick hair, i keep it short, and because of pain and hurting in right shoulder , always sleep on left side, i think hair seems thinner on that side actually, has anyone heard of anything that helps this side affect

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arvine profile image
arvine
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11 Replies
betty1943 profile image
betty1943

Arvine - I had the same happen to me and I am sure many will write to join us. Eat healthily, have your hair cut regularly, try and use natural products. All the dead hair will come away but a good hairdresser will keep you up to date on the new hair growth, and it will grow back. At least that has been my experience as I dropped my pred dose. Good luck and try not to worry.

arvine profile image
arvine in reply to betty1943

thanks Betty, so you noticed as you dropped, i was under impression the lower dose you tapered to, the less your hair would be affected though ?

betty1943 profile image
betty1943 in reply to arvine

Arvine on a high dose your hair dies off but as you drop your dose new hair starts to come through. So eventually you will lose all your original hair and have a new head of hair. Don't worry that you will go bald I've never known that happen. Hope that is clearer.

tgca profile image
tgca

I, too, suffered hair loss at around 15 mgs (I think) and it was awful ! But, as I started reducing, the hair stopped falling out and the new stuff is catching up with the old... bit bottle brush looking though but at least it stopped... fear not !

arvine profile image
arvine in reply to tgca

oh gosh can,t wait to get down to lower doses, thank you

polkadotcom profile image
polkadotcom

It is a known side effect of Pred and I echo Betty's advice. I went to a barber for years because I got a better cut (and my daughters' hair too). Mine is thick and has a mind of it's own. I don't colour my hair anyway, but if you do it might be wiser to let it go for a few weeks.

joy-bells profile image
joy-bells

Eat Chia seeds. My hair was thinning when a friend remarked how she had all this new hair regrowth . She put it down to the Chia seeds she was eating sprinkled on her food. I have to say my hair has thickened up so has my husbands! I sprinkle it on our food at least once a day. I read somewhere that you can eat up to a Tablespoon a day. There are black and white both are good.

I bought some LSA ( Linseed, Sunflower seeds and Almonds, - ground ) which had Chia seeds added as well as a couple of other ingredients. I have thrown the packet out but one other was quinoa . I usually make my own LSA.

I have had PMR for three years and am down to 3 mg of pred.,

All the best.

bert403 profile image
bert403

I have written about this when I was losing my hair. I think it started around 15 mg...I was on 15 for quite a while and my hair was awful. I tapered slowly and around 10mg it stopped falling out. I even wore a wig, but happy to say my hair has never been so healthy and thick as it is now. I am starting 1mg tomorrow and I also am taking Biotin and Folic Acid for for the last 1 1/2 yrs. Don't know if it really works, but my hair and nails look great. I know it's devastating, but it will come back. .good luck.

arvine profile image
arvine in reply to bert403

oh thank you Bert

Cobnut profile image
Cobnut

I found that for me it was taking Alendronic Acid that caused my hair to rapidly thin. When I stopped taking it it quickly grew back.

arvine profile image
arvine

what is aledronic acid for , are you being treated for pmr , or another ailment,

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