Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2016

Feeling Stiffness After Decrease

Thank you everyone for your advise and kind words after my first posting. Went down from 50mg (on it for 7 days) to 20mg yesterday and I'm getting very stiff...

Thank you everyone for your advise and kind words after my first posting. Went ...

Ligtocicar

•8 years ago

3 Replies

GCA?

I may be worrying about nothing but I would rather have the forum's advice than go through the pain barrier of the GP surgery. I have been on pred for three...

I may be worrying about nothing but I would rather have the forum's advice than ...

Ida-June128

•8 years ago

2 Replies

Groin pain

Good morning everyone. I was diagnosed with PMR in May last year and have been gradually decreasing prednisolone and dealing with side effects. A few weeks...

Good morning everyone. I was diagnosed with PMR in May last year and have been ...

Goldielady

•8 years ago

8 Replies

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Prednisone Question

I was diagnosed with GCA May 19 th, 2016. Since then, I've been on megadoses of prednisone, starting at 60 mgs.a day, then 50, 40, and tomorrow starts 30 mgs....

I was diagnosed with GCA May 19 th, 2016. Since then, I've been on megadoses of...

Mgeorge

•8 years ago

17 Replies

Walking

Could anyone tell me if they have ever had this problem was wondering if it is connected to pmr I know I have problems with hips knees and back but have been...

Could anyone tell me if they have ever had this problem was wondering if it is c...

Rusty8

•8 years ago

12 Replies

Ignorant GP

I was diagnosed with PMR at end of May and put on 15mg of Prednisolone reducing to 12.5 two weeks ago. My reduction plan says in a week's time I reduce to...

I was diagnosed with PMR at end of May and put on 15mg of Prednisolone reducing...

Mish1920

•8 years ago

13 Replies

Flare up after going to hairdessers

Hi everyone for about ten years I have been going to doctors with face neck shoulder groin pain and general weakness and fatigue (never had headaches) They did...

Hi everyone for about ten years I have been going to doctors with face neck shou...

Daisydarling

•8 years ago

7 Replies

Myofascial pain

Can anyone explain to me about myofascial pain please as I often hear it mentioned on this site and wonder if it fits my symptoms. I have had PMR for just over...

Can anyone explain to me about myofascial pain please as I often hear it mention...

MaryWR

•8 years ago

16 Replies

New to PMR

Hello everyone, this is my first post. I was diagnosed with PMR one week ago today. My C- Reactive Protein was at 91. Been on 50mg prednisone for 7 days, and...

Hello everyone, this is my first post. I was diagnosed with PMR one week ago tod...

Ligtocicar

•8 years ago

11 Replies

Bowen Therapy

Thanks to PMR Pro and all those others who advocated Bowen Therapy for myofascial pain. It works! Last week I had a third appointment, having felt better and...

Thanks to PMR Pro and all those others who advocated Bowen Therapy for myofascia...

Annodomini

•8 years ago

4 Replies

Soon much better!!

I am on day two for my increase; i feel better. Actually, up/out of bed, cleaned a room :) thanks for getting me through with the support of your wisdom . Have...

I am on day two for my increase; i feel better. Actually, up/out of bed, cleaned...

klairv0yant

•8 years ago

4 Replies

GCA and lefumomide

Saw new rheumy today and he changed the Azathri0prine to Lefumomide. I was never happy with the Azathrioprine but does anyone know anything about Lefumomide....

Saw new rheumy today and he changed the Azathri0prine to Lefumomide. I was never...

christine2715

•8 years ago

8 Replies

GCA and lefumomide

Have just come home after seeing my new rheumy and he has said I should stop taking the antibiotics - which I had never really seen the point of - they were...

Have just come home after seeing my new rheumy and he has said I should stop tak...

christine2715

•8 years ago

1 Reply

Gall bladder polyps

Hi all, after complaining of stitch like pain in left side under rib and going round to my back, I was given an ultra sound. They have discovered I have a...

Hi all, after complaining of stitch like pain in left side under rib and going r...

jules1955

•8 years ago

10 Replies

So angry 😁

Hi everyone, so I am back from seeing my GP and it went just how I thought it would,, she didn't listen to a word I said. She basically looked over the report...

Hi everyone, so I am back from seeing my GP and it went just how I thought it wo...

misaryk

•8 years ago

21 Replies

Symptoms confusing me..

I feel so heavily tired, my body feels heavy - that is the best word I can use. I've decreased my dose from 25 to 20 11 days ago. I'm so upset with how beat...

I feel so heavily tired, my body feels heavy - that is the best word I can use. ...

klairv0yant

•8 years ago

11 Replies

Professor Dasgupta on video

Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and...

Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, wh...

Polywotsit

PMRGCAuk team member•8 years ago

5 Replies

Reduction

Hi, I haven't posted for a long time as I've been reducing following the dead slow stop method and have been doing brilliantly, only a few hiccups along the...

Hi, I haven't posted for a long time as I've been reducing following the dead sl...

Angex05

•8 years ago

6 Replies

Chewing

Hi all. One of the symptoms of gca is jaw or tongue pain when eating. Can someone tell me where abouts in the jaw or tongue the pain is. The best way to...

Hi all. One of the symptoms of gca is jaw or tongue pain when eating. Can someon...

rogerc

•8 years ago

11 Replies

Go see GP tomorrow and feeling really drained.

Hi everyone, my family doctor is finally back tomorrow so I will be seeing her and discussing all the symptoms, just hope I can make myself clear. Quick...

Hi everyone, my family doctor is finally back tomorrow so I will be seeing her a...

misaryk

•8 years ago

13 Replies

Is Exhaustion a reason to stop a slow reduction of Prednisolone?

I have slowly,with some stop and starting, reduced my Prednisolone dose by 5 mgs. I have now been on 15 mgs for 3 days. The aches and pains are slight and...

I have slowly,with some stop and starting, reduced my Prednisolone dose by 5 mgs...

SheffieldJane

•8 years ago

22 Replies

Christine is getting on her bike for PMRGCAuk!

Hello everyone! There is still time to support our wonderful fundraiser Christine Catterall, who is doing a sponsored bike ride for us on 28 August. Christine...

Hello everyone! There is still time to support our wonderful fundraiser Christin...

Polywotsit

PMRGCAuk team member•8 years ago

1 Reply

Normal Sed Rate, still PMR?

I had every symptom of PMR (pain in all the right places) for one month and initial blood work showed high reactive protein (CRP) of 4.5 but low Sed Rate (8)....

I had every symptom of PMR (pain in all the right places) for one month and init...

Dwid

•8 years ago

4 Replies

Forgot my tablets!

I usually take my 6mg Pred after my evening dinner. We are on holiday, went out to eat and I forgot! What advise would you give now please? Shall I take a...

I usually take my 6mg Pred after my evening dinner. We are on holiday, went out ...

Content1

•8 years ago

5 Replies

Question regarding the cause of PMR

I was trying to explain to someone what PMR was and part-way into my explanation, they interrupted and asked if I have Cushings or Addisons disease. I've...

I was trying to explain to someone what PMR was and part-way into my explanation...

TooSore

•8 years ago

18 Replies

Forearm pain

Hi all, I'm still on 2.5 mg Pred a day so not doing too bad. My neck and thigh pain pretty good now but struggling with pain in elbow joint and forearms...

Hi all, I'm still on 2.5 mg Pred a day so not doing too bad. My neck and thigh p...

David_H

•8 years ago

5 Replies

What can I do about a ravenous appetite?

Thank you everyone for the help and advise you give on these posts. Until now I have read and learned, but I would like some help. Since I have been on...

Thank you everyone for the help and advise you give on these posts. Until now I ...

43tripandskip

•8 years ago

25 Replies

PMR and stress

Been a while since I posted, but a lot has been going on! Was diagnosed with PMR 18 months ago, and am now at 9mg pred daily, having twice got down to 7mg. On...

Been a while since I posted, but a lot has been going on! Was diagnosed with PMR...

Charlie1boy

•8 years ago

17 Replies

Reduced and in pain again

Morning everyone. I reduced pred a week ago from 5mg to 4.5mg I am suffering severe burning pain in my shoulders again. Should I work through it or do I...

Morning everyone. I reduced pred a week ago from 5mg to 4.5mg I am suffering s...

Mandmellons

•8 years ago

8 Replies

Exercise, how much?

I was diagnosed with PMR in March, and am at present on 11.5mgs Prednisolone, and doing quite well. The problem is mainly in my upper arms, and I have pain...

I was diagnosed with PMR in March, and am at present on 11.5mgs Prednisolone, an...

slewis

•8 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2016

Feeling Stiffness After Decrease

GCA?

Groin pain

Prednisone Question

Walking

Ignorant GP

Flare up after going to hairdessers

Myofascial pain

New to PMR

Bowen Therapy

Soon much better!!

GCA and lefumomide

GCA and lefumomide

Gall bladder polyps

So angry 😁

Symptoms confusing me..

Professor Dasgupta on video

Reduction

Chewing

Go see GP tomorrow and feeling really drained.

Is Exhaustion a reason to stop a slow reduction of Prednisolone?

Christine is getting on her bike for PMRGCAuk!

Normal Sed Rate, still PMR?

Forgot my tablets!

Question regarding the cause of PMR

Forearm pain

What can I do about a ravenous appetite?

PMR and stress

Reduced and in pain again

Exercise, how much?

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