Been a while since I posted, but a lot has been going on!
Was diagnosed with PMR 18 months ago, and am now at 9mg pred daily, having twice got down to 7mg. On both occasions I found that the stiffness/pain first thing in the morning was too much, especially at the top of my right arm, which is where it all started.
However, at the end of July, I was diagnosed with prostate cancer, and I am thinking that all the stress involved with the diagnostic procedures has not exactly helped the PMR!
Fortunately, the cancer is treatable with hormone and radio therapy, but my GP tells me that I really must go back on to Alendronic Acid, at least till I get down to 7.5 mg, as the hormone therapy can affect bone strength in the same way the prednisolone allegedly does.
Hopefully, I will be able to start tapering again soon, albeit slowly. The good news is that the cancer has not spread to my bones or lymph nodes, so the stress should reduce now.