6,794 members10,597 posts

GCA and lefumomide

Have just come home after seeing my new rheumy and he has said I should stop taking the antibiotics - which I had never really seen the point of - they were given as a preventative. He also stopped the azathrioprine which I had never been happy with. He has replaced it with Lefumomide 20 mg. Is anyone taking that and how do they get on with it. I have had a bad flare since reducing the Predisilone at 5 mg a week and everyone said that was too fast but my last rheumy insisted I should stay with that reduction. Had got down to 25 mg. Now the new rheumy says I should go back to 30 mg for a month which is probably right but seems disappointing to have to go backwards. Also got my bone density scan and not sure what it means but I have osteopenia which seems to be a lesser thing than osteoporosis - it says I have a 22.8% chance of a fracture within 10 years and a young adult t score of - 1.9 - whatever all that means! Anyway - wont be able to get rid of the aleondronic acid or adcal. Was surprised the rheumy seemed to be relying mostly on what I told him. He hadn't seen any of my scans including the PET scan that diagnosed GCA and he hadn't seen the bone density scan. Well - maybe I have made some progress!

1 Reply

Posted on your other comment. Why do you say you can't get rid of the AA? If you haven't already, sign up to the osteoporosis forum on this website.


You may also like...