Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,298 members • 38,023 posts

All posts for May 2016

Back on pred !

Hi all, haven't been here in ages , hope you are all doing well....ish ! Off pred 5 weeks past couple days feeling very sore in shoulders arms and hips 😦...

Hi all, haven't been here in ages , hope you are all doing well....ish ! Off pr...

bumpermac

•8 years ago

2 Replies

Muscle atrophy?

Hi all. I've been treated for PMR and RA for 18 months. Just wondering if anyone else has suffered muscle atrophy? I've lost muscle in my calves and also my...

Hi all. I've been treated for PMR and RA for 18 months. Just wondering if anyo...

shedevil7953

•8 years ago

6 Replies

Midnight pred

It is my understanding that taking prednisone can cause damage to your esophagus when taken on an empty stomach and lying down. Even if it is taken with a...

It is my understanding that taking prednisone can cause damage to your esophagu...

Nap1

•8 years ago

8 Replies

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LDN (Low dose Naltrexone)

Has anyone heard of this being used for pmr/fibro/cfs?

Hidden

•8 years ago

1 Reply

Hand pain

Does anybody else get hand and wrist pain been on preds for almost 3years down to 4mg at the moments ,doc thinks this is nothing to do with PMR does anyone...

Does anybody else get hand and wrist pain been on preds for almost 3years down t...

jillianb

•8 years ago

12 Replies

Swollen artery in neck - should I be worried?

I have had PMR for 3½ years (since diagnosis) and am now down to just 1mg daily. I have had pain/aching on the right side of my neck for 3 or 4 days and...

I have had PMR for 3½ years (since diagnosis) and am now down to just 1mg daily....

Jeanieallergy

•8 years ago

1 Reply

advise on reduction following flare.

Hi All I have just has a flare, got down to 14mgs and (stupidly) despite having a few aches and pains reduced to 13 (slowly I might add), I had hoped it was...

Hi All I have just has a flare, got down to 14mgs and (stupidly) despite having ...

lesley2015

•8 years ago

9 Replies

Get rid of aches and pains

The other day as I was driving my ice cream truck I clipped the side of a car, slightly scraped the paint off it. I stopped then suddenly jumped out of the...

The other day as I was driving my ice cream truck I clipped the side of a car, s...

granelliheywood

•8 years ago

Be the first to reply

Severe Head Pain From GCA, Etc

We have posted before and thank you all so much for your advise and encouragement. My wife, a GCA patient, had two flares a couple months ago. We were at 19...

We have posted before and thank you all so much for your advise and encouragemen...

Jim-CJ

•8 years ago

8 Replies

Reduction in preds for GCA caused emegence of PMR

I haven't witten for a while, been coping quite well. I had reduced to 14 mgs for the GCA, then stared with a bit of pain in my lower back, then my hips and...

I haven't witten for a while, been coping quite well. I had reduced to 14 mgs fo...

j-e-a-n

•8 years ago

3 Replies

Woodbridge Suffolk coffee and chat

Thursday 26th May 2.00pm at Wyevale Garden Centre, Woodbridge. Just a few fellow sufferers are meeting to share our stories, chat and have coffee or tea....

Thursday 26th May 2.00pm at Wyevale Garden Centre, Woodbridge. Just a few fellow...

Soosie56

•8 years ago

8 Replies

A flare-up has occurred at 9mg Pred, how much Pred to increase and for what duration OR remain at current 9mg. will my body adjust?

A 71 year old male, diagnosed with PMR November 2015. 1. Began 20mg Pred. Right shoulder weak. 2. January 5 ~ Jan 30 - 17.5 mg. Pred. Sore shoulders, right arm...

A 71 year old male, diagnosed with PMR November 2015. 1. Began 20mg Pred. Right ...

Rkskier

•8 years ago

15 Replies

Anyone receiving PIP or the old one DLA

I was told many years ago I was suffering from Fibromyalgia, UC plus depression etc and received DLA on the highest level. Do I call the Department of Health...

I was told many years ago I was suffering from Fibromyalgia, UC plus depression ...

Lottieonline

•8 years ago

6 Replies

Advice please

I did write a quite long and detailed post. But it got lost in the ether somewhere ! If one of you lovely lovely friends have the energy to catch it please...

I did write a quite long and detailed post. But it got lost in the ether somewhe...

Emilytom52

•8 years ago

29 Replies

Advice on taking bisphosphonates

I am looking for a bit of advice on whether I should go along with the rheumy's suggestion that I start taking bisphosphonates. I am 57 and was diagnosed with...

I am looking for a bit of advice on whether I should go along with the rheumy's ...

anniemb

•8 years ago

9 Replies

Merina cool

Does anyone know if the Merina coil/menopause can cause all these horrible symptoms I've had for last six months... Just coincidental that I've had the coil...

Does anyone know if the Merina coil/menopause can cause all these horrible sympt...

Dawnie08

•8 years ago

6 Replies

To increase or not?

I was diagnosed with GCA last May and have followed a reducing plan from 60mgs to 6.5mgs when I have experienced a flare. My symptoms have been mainly through...

I was diagnosed with GCA last May and have followed a reducing plan from 60mgs t...

Gb2613

•8 years ago

8 Replies

Tips to relieve stress

Stress can cause irreparable damage to our health. From early aging to heart problems. Some people say that they perform better when under stress but that's...

Stress can cause irreparable damage to our health. From early aging to heart pro...

wilmawilfred

•8 years ago

2 Replies

Crossed-Eyes Do they get better?

My optic nerves have not been badly hurt. I am not blind. But I have a number of issues with my eyes. Some posts on here seem to imply that with increased...

My optic nerves have not been badly hurt. I am not blind. But I have a number of...

Asbeck

•8 years ago

7 Replies

Pred in different time zone

I am shortly travelling to the USA California- In different time zone- anyone with any thoughts on when to take the pred whilst away - I currently take it all...

I am shortly travelling to the USA California- In different time zone- anyone wi...

r-o-y-1

•8 years ago

7 Replies

INFRA RED SAUNA

Has anyone experience of using these- I seem to be hearing conflicting things with some saying it is good for you but others saying be careful if you have...

Has anyone experience of using these- I seem to be hearing conflicting things wi...

r-o-y-1

•8 years ago

4 Replies

Burning feeling

Does anyone get burning feeling in hips and lower back when have over done it . In time I will learn not to over do it after feeling better after a few days...

Does anyone get burning feeling in hips and lower back when have over done it . ...

Mistyscot

•8 years ago

7 Replies

A bit of help?

Hello all you lovely people. I slowly tapered to 9.5 Pred over a period of 3 weeks. But after months of family stress I too feel like I've been hit by a bus....

Hello all you lovely people. I slowly tapered to 9.5 Pred over a period of 3 we...

Judigardener

•8 years ago

5 Replies

Prolia

Has anyone taken Prolia for bones? I took my first shot today. I have read some awful side effects and would like to know if anyone in this group has used...

Has anyone taken Prolia for bones? I took my first shot today. I have read som...

Nap1

•8 years ago

8 Replies

Wobbly legs and hands - is it the pred?

I am taking 15mg pred for PMR and have been for 6 weeks. Although the pain has eased of PMR my legs and hands are terrible and feel very wobbly. I am wondering...

I am taking 15mg pred for PMR and have been for 6 weeks. Although the pain has e...

CarrieP

•8 years ago

10 Replies

Finally a confirmation of diagnosis!

Well finally saw neuro Opthomologist this morning and after four months of no answered he confirmed that I have Ggca and pmr. He confirmed by the symptoms and...

Well finally saw neuro Opthomologist this morning and after four months of no an...

Shastring

•8 years ago

17 Replies

Vasculitis Foundation (USA and Canada)

For those on here from Canada or the US, in case you didn't know, there is a foundation as described in the title above. - http://www.vasculitisfoundation.org/...

For those on here from Canada or the US, in case you didn't know, there is a fou...

Mark506

•8 years ago

1 Reply

Newish to PMR

Further to my post of 10 days ago I am still sticking to the 15mg from the 20 which I had been on for a week. People on this site told me that it was too much...

Further to my post of 10 days ago I am still sticking to the 15mg from the 20 w...

May10

•8 years ago

7 Replies

AGM

Hi people,I feel so much better the last year and wondering is any one from the north east going to the AGM in London, it would be nice to have a bit of...

Hi people,I feel so much better the last year and wondering is any one from the ...

ritter

•8 years ago

3 Replies

Dry-eye syndrome - NHS Choices info

I thought people with eye discomfort might be interested in this. This has just been posted over on the lupus forum - with a comment of how much better the...

I thought people with eye discomfort might be interested in this. This has just ...

PMRpro

Ambassador•8 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2016

Back on pred !

Muscle atrophy?

Midnight pred

LDN (Low dose Naltrexone)

Hand pain

Swollen artery in neck - should I be worried?

advise on reduction following flare.

Get rid of aches and pains

Severe Head Pain From GCA, Etc

Reduction in preds for GCA caused emegence of PMR

Woodbridge Suffolk coffee and chat

A flare-up has occurred at 9mg Pred, how much Pred to increase and for what duration OR remain at current 9mg. will my body adjust?

Anyone receiving PIP or the old one DLA

Advice please

Advice on taking bisphosphonates

Merina cool

To increase or not?

Tips to relieve stress

Crossed-Eyes Do they get better?

Pred in different time zone

INFRA RED SAUNA

Burning feeling

A bit of help?

Prolia

Wobbly legs and hands - is it the pred?

Finally a confirmation of diagnosis!

Vasculitis Foundation (USA and Canada)

Newish to PMR

AGM

Dry-eye syndrome - NHS Choices info

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