We have posted before and thank you all so much for your advise and encouragement. My wife, a GCA patient, had two flares a couple months ago. We were at 19 and using a slow tapering method that was working well. But we decided to split dosages and that sent us to the hospital. Then our Ruemy said to go to 60 for one week, then reduce to 40 after one week. Back to the hospital again. Since then we stayed at 60 for four weeks. reduced all head pain down to very little. We then, not to our Ruemy's advice (he wanted 40), went to 55 for two weeks, some scalp pain, but very small. Then we went to 50 and we are at 50 now after two weeks. The last two nights, she has had severe head pain at night. The severe head pain coincided with a start with restasis treatment for her eyes, as recommended by her Opthomologist. We used Cyclosporine for the treatment for three days. Her vision improved over that time, but the head pain showed up, also. We stopped the cyclosporine two days ago in belief that it was the culprit for the head pain. But, also we stayed at 50 prednisone today, which was when we were supposed to go to 45, which was our plan. Do you think it was the Cyclosporine or the lower prednisone that caused the severity of the head pain. Any thoughts?
As Always - Thanks So Much,
Jim & CJ