I have not posted in a while. Please don't just accept that GCA makes you cross eyed and you have to live with this. I was on holiday in September 2015 and suffered a relapse at 5.25 mg. Pred. Sometimes I think that I have a crossover of Wegener's. (Granulomatosis Angiitis Sp.) The upper sides of my nose (right side) and my right ear hurt a great deal. Three days of an increase in Pred fixed it. Of course then I was stuck with the increase for a while and never got back as close to 5 mg. Two Mondays ago I was diagnosed with a very small (6 mm by 3 mm [or so]) brain tumor, frontal lobe planum meningioma. It looks as if it's benign and slow growing, but maybe it is pulling in my right eye and causing my cross-eyed-ness to be somewhat debilitating. Even with prescriptions for prisms the cross-eyed-ness is affecting my navigation, both for driving and for walking. Just before the diagnosis I saw a black curved edge on the vision in my right eye. Inside the edge was a light in the same shape of the black edge. (Again I increased the Pred, and symptoms abated.) I'm not sure why my Neuro ophthalmologist took a MRI of my brain near my eyes--whether it was the cross-eyed-ness or the black arch in my vision or something else (maybe the measurement of my pupil). I went in for a check up and stepped on a fast moving roller coaster. I didn't have a list of questions, etc. Generally these tumors don't come out--they're small, and brain surgery is generally not good for the brain if the tumor seems to be something that you can live with. The MRI showed that I have been having TIAs in the small vessels in the area. Again: Small Vessels? Don't know if these are hurting the eye or why I have them. Age? I am 66 years old. Wegner's crossover?
I am having another MRI tomorrow I guess to look at the area of my brain closer to the right eye. Now I question everything. Why I have certain symptoms, etc. But generally meningiomas don't get discovered on account of symptoms. A brain surgeon thinks that the tumor might be unrelated to the eye turning in. But I think that the neuro ophthalmologist disagrees. (I'm not sure what he thinks.) This is not an issue unless I'm a candidate for surgery or some other type of treatment on the tumor.
And so the saga goes on and on and on.
I have empathy for all of us who don't seem to quickly go into remission. And thank you for your continued support.