Hi, I was diagnosed with Polymyalgia Rheumatica plus some of the symptoms of GCA in June 2015 and started off on 50 mg of Prednisolone daily reducing every two weeks by 5 mg. I am now for the second time trying to break through what seems to be the barrier of 10mg downwards. I got down to 8mg and found that I was in a great deal of pain and stiffness and sleeping all the time and had no strength. My Doctor immediately put me back up to 10mg and within days I had no pain, was wide awake etc. She did a blood test after about 2 weeks to check on inflammation in joints etc and I started the downward route once more reducing by 1mg per month, but this time I realised that on 2 x 5mg tablets I was fine but when the 1 mg tablet was introduce at 9mg per day I was in trouble. Could it be that the 1mg tablet had a different make-up to the 5mg tablet I wondered. Having had to live on medication most of my life I have found that the make up of the tablet or capsule can affect how one responds to it and what side effects one experiences. So this time I am using 2 x 5 mg tablets and dividing the second of these to make up the required dose per day. Fiddly I know, but I am now on 8 mg per day and no stiffness or pain in the mornings or indeed at all. This is reducing at 1mg per month from now on or that is the plan. I have been used for the last 20 years or so to pace my activities because of chronic pain from a back problem and walking problems too, so pacing wasn't really an issue, but for six months I was TOLD to have complete rest and do nothing to aggravate the condition - which I did and would say that this, hard as it was, was key to reducing the dosage and not experiencing any problems until the introduction of the 1mg tablets. I won't say I have found the answer, but for me it seems to be, and to continue the downward dosage seems to be working at the moment and so I am quite positive. I am wide awake during the day and able to start to build up my strength again and do some jobs around the house, always mindful of pacing myself and resting. If you think it is worth a try then with your Doctor's OK, I would say give it a go. I have had fantastic support from my GP, the hospital department and the nurses throughout this and telephone consultations whenever needed with my GP if I had problems or was anxious or just to update her and for her to update me.
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