You all have been so gracious and helpful sharing your experiences withTA/GCA, I want to thank you! I have at many months, while decreasing my dosage, read similar side effects happening to our readers. I want to give a " call out" for hanging on for a week when lowering dosages. I have had TA for 26 months and am down to 3mg. I have kept a journal of all illnesses, side effects, places where we have been and stressful times.
This last month when lowering 1 mg. I had symptoms of TA come back: fever, flu like symptoms, stuffy nose, muscles aching, scalp soreness. My dear husband said " let's hang in there this time for a few days and see what happens". I was sick and wanted to go back to 4mg. but thought okay! Low and behold 4 days later, temperature back to normal, muscle aches and scalp pain gradually disappeared. 2 weeks later all I have is my "stuffy nose". Don't know if it is my adrenal is getting stronger, but I have been struggling since November with -4-5-4-6-4 mg (each time I would get antibiotics because of fever, throat, cough. I hope this will help someone with a similar situation. We must beat this!