I had my Rheumy appointment today ( after missing it on Friday). This is the second time I have seen Dr Hughes in Chertsey and both times I have found him so reassuring. This appointment was so important for me as I have been in a lot of pain, especially in my right thigh, both knees and my right hip. He injected my knees with steroid and, explaining that it is my fascia in the thigh that are really tight , probably because of the inflammation from either the PMR or the OA, he gave me another injection in my bum to try to relax the fascia, which no one else has been able to do or understand for the last 6 months or so.
He explained why the knee orthopaedic specialist told me that steroids accelerate OA ( scaring me so much)- they are trained to think that even though it is not true!
He also told me that it is fine to take neurofen for my pain as I am not on high doses of Pred. (9.5 currently), which means that maybe I can stop taking co-codamol (which makes me very sleepy). He said I would know soon enough if it aggravates my stomach.
He recognised what an effort I am making to lose weight which will really help with the pain- I have lost 21kgs. so far, 6 kgs. more than the steroid weight I put on, and encouraged me to carry on.
Overall, he is reassuring, calm , confident and respectful of my knowledge and experience with PMR.
Thank you to Celtic who put me onto him and to PMRpro for explaining myofascial pain and bursitis which helped me to communicate my difficulties.