Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,456 members • 38,374 posts

All posts for April 2015

The methotrexate experiment

I began taking MTX for my GCA from the very beginning of my illness because high dose steroids caused mania. So I have never been on 'just steroids' for the...

I began taking MTX for my GCA from the very beginning of my illness because high...

Hidden

•9 years ago

11 Replies

AM I ON TRACK WITH MY REDUCTION OF HYDROCORTISONE?

Started on 15mg x 2 daily, morning and evening dose 14 February 2015 for my PMR which was finally diagnosed in January 2015. Fairly certain it started May...

Started on 15mg x 2 daily, morning and evening dose 14 February 2015 for my PMR ...

Megams

•9 years ago

11 Replies

Rosacea

Has anyone developed this since they've been on steroids? I have started to get very red cheeks in the last month. I'm currently taking 7mg pred. Daily. My GP...

Has anyone developed this since they've been on steroids? I have started to get ...

Mama48

•9 years ago

7 Replies

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Please advise..

Probably finding this community in time is going to be a life-changer for me! Here goes my story: I am on 40 mg prednisolon for 'suspected' GCA since 28...

Probably finding this community in time is going to be a life-changer for me! He...

Want_to_know

•9 years ago

7 Replies

Should I retire or cut down drastically on activities or will I then be bored and still sore?

I have had PMR for nearly 2 years I started on 12mg Pred and I manage to get down to around 7mg with slow reductions and then it kicks in again. So I have been...

I have had PMR for nearly 2 years I started on 12mg Pred and I manage to get dow...

zorroaster

•9 years ago

19 Replies

Thigh pain with PMR?

I was diagnosed with PMR in January and am now down to 10mg prednisolone. Originally my pain was in my arms and shoulders with nothing more than a little...

I was diagnosed with PMR in January and am now down to 10mg prednisolone. Origin...

MaryWR

•9 years ago

9 Replies

Flying with GCA

I was diagnosed with GCA July 7th 2014. I wrote shortly after that asking if flying a long distance is safe for one's eyesight. I would be flying from San...

I was diagnosed with GCA July 7th 2014. I wrote shortly after that asking if fly...

DeliaGray

•9 years ago

11 Replies

Pmr questions

Hi friends I've ust been diagnosed with Pmr my pain in my arms my shoulders my wrist in my neck hurts so much I can hardly dress myself the doctor pout me on...

Hi friends I've ust been diagnosed with Pmr my pain in my arms my shoulders my w...

pmrpap

•9 years ago

6 Replies

Two years on and still on 15mg prednisolone

Hi, Trying the seven days 15mg one day 14 mg etc, and am down to four days 15 and one day 14. and had another wobble! I have been up and down with the dose so...

Hi, Trying the seven days 15mg one day 14 mg etc, and am down to four days 15 a...

Classicmichael

•9 years ago

9 Replies

Thank you

Thank you , we are new to this and our dr only has one other patient with GCA .

Skrtjg

•9 years ago

8 Replies

GCA

My friend has GCA I would like to know how others are handling it. They had him down to 20 mg of predosone Then he had surgery and is back up to 50 not doing...

My friend has GCA I would like to know how others are handling it. They had him ...

Skrtjg

•9 years ago

3 Replies

PMR & Exercise

Hi, I read somewhere that some exercises could further damage inflammed muscles? I used the weights machine for a short while on my shoulders a week or so ago...

Hi, I read somewhere that some exercises could further damage inflammed muscles?...

David_H

•9 years ago

14 Replies

Sleep deprivation

Having trouble staying asleep - fall asleep easily but wake in the early hours with thoughts whirling round & keeping me awake - any suggestions as to what I...

Having trouble staying asleep - fall asleep easily but wake in the early hours w...

grannyh

•9 years ago

9 Replies

Alendronic acid

Hi there! Is anyone on, or been on, alendronic acid? Have PMR newly diagnosed, on 15mgs for four weeks ( just two weeks in) then down to 12.5 for four weeks...

Hi there! Is anyone on, or been on, alendronic acid? Have PMR newly diagnosed, ...

Carrollee

•9 years ago

20 Replies

PMR Pain

Thought I'd posted this a couple of days ago, but must have failed! Am interested to know whether PMR pain moves around to different locations in the body. I...

Thought I'd posted this a couple of days ago, but must have failed! Am intereste...

Charlie1boy

•9 years ago

8 Replies

Are there any signs

I'm Just wondering. When reducing pred to a minimal amount, are there any physical signs that your adrenals are kicking back in, if so, what are they? Does...

I'm Just wondering. When reducing pred to a minimal amount, are there any physi...

JJackdaw

•9 years ago

13 Replies

gca and abdominal aorta problems

Has anyone developed abdominal, intestinal problems that have GCA. My new doctors is concerned and doing all kinds of test. Didn't think it could be in other...

Has anyone developed abdominal, intestinal problems that have GCA. My new docto...

cassey1879

•9 years ago

11 Replies

OA Knees

After 3 years of PMR, I was diagnosed with OA( x-ray and MRI) in my right knee in December. The pain was awful but a cortisone shot made me feel vaguely human...

After 3 years of PMR, I was diagnosed with OA( x-ray and MRI) in my right knee i...

suzy1959

•9 years ago

5 Replies

Antibiotics while taking Pred

Hi Just to say how much I appreciate reading this site every day and feel that at least I am keeping myself as informed as I can and really appreciate all the...

Hi Just to say how much I appreciate reading this site every day and feel that a...

Jackoh

•9 years ago

9 Replies

Chicken Pox and PMR/GCA

I definitely thought I was too old to have chicken pox. Unfortunately my nephews visited during the infectious period and I was unlucky to get it. I felt as...

I definitely thought I was too old to have chicken pox. Unfortunately my nephew...

hwigston

•9 years ago

5 Replies

Leflumonide

Has anyone any information on leflumonide I have been prescribed this and want to know what it is for. Any help appreciated

Has anyone any information on leflumonide I have been prescribed this and want t...

Howard523

•9 years ago

13 Replies

PMR & Osteoporosis

Hi all. had a routine bone density test as I'm on Pred. The results showed I'm just into Osteoporosis on my hips (well some parts of my hips anyway - worst...

Hi all. had a routine bone density test as I'm on Pred. The results showed I'm j...

David_H

•9 years ago

2 Replies

Just a moan

Lower spine pain becoming almost unbearable. Told gp, not interested, blame the pred. I have tried increasing pred from 8 to 10 but no relief. Walking is...

Lower spine pain becoming almost unbearable. Told gp, not interested, blame the ...

JJackdaw

•9 years ago

11 Replies

PMR GCA Scotland AGM

PMR GCA Scotland will be holding their AGM on Tuesday 21 April at the Queen's Hotel, Dundee. Coffee will be served from 10.30 and the meeting will commence...

PMR GCA Scotland will be holding their AGM on Tuesday 21 April at the Queen's ...

sara4

•9 years ago

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Pred reduction

Me again, I have been trying to reduce my preds and am supported by Mycophenalate (2 x 500mg twice a day). I have gone from 20mg/day and stepped down by 1mg...

Me again, I have been trying to reduce my preds and am supported by Mycophenalat...

Griggser

•9 years ago

8 Replies

What is ESR

Can someone please explain, in words of one syllable, specifically what ESR means. For example mine has just trebled to 18 after 6 months at 6 or below. Please...

Can someone please explain, in words of one syllable, specifically what ESR mean...

tourdefrance

•9 years ago

4 Replies

Low back pain

I have been on predisone 2 1/2 years. I am currently on 2 mg every other day. I am presently having severe low back pain and a little shoulder pain. The...

I have been on predisone 2 1/2 years. I am currently on 2 mg every other day. ...

Nickie

•9 years ago

1 Reply

Risedronate sodium 35mg

After a bone density scan about five months ago I was deemed to have osteopenia and put on Risedronate Sodium one 35mg tablet a week. Almost immediately I had...

After a bone density scan about five months ago I was deemed to have osteopenia ...

Thomas45

•9 years ago

4 Replies

Problems

Hi this forum is really helpful , the problem I'm having is this I was diagnosed with PMR by my GP two and a half years ago and put on prednisolone at 20mg...

Hi this forum is really helpful , the problem I'm having is this I was diagnose...

di-bach

•9 years ago

2 Replies

tired

I have had pmr since May 2011 so I should be used to it you would think. However I have had other health problems on the way which pmr exacerbates. Last autumn...

I have had pmr since May 2011 so I should be used to it you would think. However...

kingharold11

•9 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2015

The methotrexate experiment

AM I ON TRACK WITH MY REDUCTION OF HYDROCORTISONE?

Rosacea

Please advise..

Should I retire or cut down drastically on activities or will I then be bored and still sore?

Thigh pain with PMR?

Flying with GCA

Pmr questions

Two years on and still on 15mg prednisolone

Thank you

GCA

PMR & Exercise

Sleep deprivation

Alendronic acid

PMR Pain

Are there any signs

gca and abdominal aorta problems

OA Knees

Antibiotics while taking Pred

Chicken Pox and PMR/GCA

Leflumonide

PMR & Osteoporosis

Just a moan

PMR GCA Scotland AGM

Pred reduction

What is ESR

Low back pain

Risedronate sodium 35mg

Problems

tired

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