Me again, I have been trying to reduce my preds and am supported by Mycophenalate (2 x 500mg twice a day). I have gone from 20mg/day and stepped down by 1mg every two weeks. At 17mg I started feeling the pain in my hips again and now it is quite noticeable. Not sure what to do and now questioning if the Mycophenalete is actually doing anything. I had already tried Methotrexate and Azathriprine without success. Also feeling really tired, sore eyes and fatigued all the time. I am on half days at work which is just as well at the moment but how long can that go on for?
If I do physical work or walk any distance the pain and fatigue is worse. Really very fed up as this is so limiting but with no outward signs it's difficult for people to understand what your feeling!
Am I doing something wrong?