Started on 15mg x 2 daily, morning and evening dose 14 February 2015 for my PMR which was finally diagnosed in January 2015. Fairly certain it started May 2014 when I sustained a fall playing table tennis. ESR level February 2015 was 16, 3 weeks of Hydrocortisone when bloods done in March was down to 8.
I have not had ESR tested since then but presume now down further, hopefully.
Saw my Rheum. Specialist 9 April and asked if we could begin reduction.
Apart from mild neck intermittent niggles I am not experiencing pain and disability like I did.
My day changes with any stress however, and the next day I am fairly fatigued which I gather from reading posts on this site is from the fact our adrenal glands are suppressed by the medication.
It took along the "dead slow and stop" method of reduction kindly supplied my PMRPro and asked my Rheum. Spec if I could follow this method.
His comments were that this method was for Prednisone and not Hydrocortisone so I would need to drop 5mg Hydrocortisone each month.
My initial total dose was low and was equivalent to 10mg Prednisone.
My question please: can I taper any quicker or am I going to take the approach as suggested by him to drop 5mg per month? Provided all goes OK under this system it will be October 2015 when off Hydrocortisone.
Whilst the dose is low I have been sensitive to the side effects which has created on going range of medical issues, with added mood swings and dreadful sleep.
I appreciate there are folk worse off than me - still count my blessings especially on a good day. Thank you in advance.