Sleep deprivation: Having trouble staying asleep... - PMRGCAuk

PMRGCAuk

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Sleep deprivation

grannyh profile image
9 Replies

Having trouble staying asleep - fall asleep easily but wake in the early hours with thoughts whirling round & keeping me awake - any suggestions as to what I can do or take to get back into an acceptable sleep pattern - preferably OTC . All ideas welcome!! Many thanks in advance

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grannyh profile image
grannyh
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9 Replies
olive2709 profile image
olive2709

Know how you feel I use boots sleep aid or any other own brand depending what shop iam in every 3-4nights . Also turn of all electronic things 1hour before bed including TV . I read books tune into radio 4 and when I wake push sleep button on radio as radio 4 becomes world service keep very low so you have to concentrate helps

lynne99 profile image
lynne99 in reply to olive2709

Oh it is so nice to hear it is not just me that keeps radio 4 on all night. :) I find that if it is not on I keep all my senses alert waiting for something ... what I do not know.

Some nights, I work so hard in my head at night that by morning I'm shattered and no real jobs done. :(

HurtingPat profile image
HurtingPat

Really fed up of only a few hours sleep. Wake up for a wee at 12 o'clock then sleep for an hour ,etc by 5 o'clock im ready for a cup of tea. Then waiting to get up

olive2709 profile image
olive2709 in reply to HurtingPat

It's the pred that causes the trouble I am on 16mg down from 40mg last September fall asleep during day for 10-20mins I don't fight it any longer try togo with the flow that way I stay calm still have nights were I get no sleep

grannyh profile image
grannyh

Thanks for replies to my query re no sleep - just remembered had to increase pred a couple of weeks ago by 1mg -what a difference that can make!!

Patricia157 profile image
Patricia157

I was diagnosed in January this year and had similar problems to you. I found that it was better to just get up for half an hour and maybe have a drink and a read. I sometimes took a paracetamol to calm my brain as I used to find it helped long before I was diagnosed.

I also purchased an electric blanket which has several settings. The one I have can start at high to warm the bed and then I could reset it to very low and it turns itself off after an hour. This has worked for me and now I get a much better nights sleep. I still have the odd night with poor sleep but it is usually when I have started on another reduction in Pred but I am doing this very slowly according to the advice given on this forum.

The other helpful thing I found was when my upper arms ache I have a neck pillow which I hold between my arms and it separates my arms when lying on my side. A very small cushion or maybe a rolled up towel would work as well.

I hope you get some relief soon.

Celestee profile image
Celestee in reply to Patricia157

I feel as if I wrote this post. My sleep is also horrible. My arms go numb, I use a giant pillow to keep the one I'm not sleeping on up.

I sleep on an electric blanket, and use a heating pad during the day for my neck and shoulder. i seen a fitted neck and shoulder heating pad and need to get it.

For me the relief comes and goes. More here than gone,

barbara1234 profile image
barbara1234

In my case, I can't blame my usual sleep problems on PMR--rather, I think they're age-related. I happen to be 84 y.o.

At my age, it is pretty usual for persons to awake around 2 or 3 a.m. and be unable to get back to sleep for a few hours. I have found it best for me to get up and surf the Internet or read or something until time for the morning paper at about 5 a.m. At that time I eat a light breakfast and read the paper and sometimes go back to bed, sleeping soundly for another two or so hours. (I don't always go back to bed, but just when I think I have quite a need to do so.)

What do you'uns think?

Best, Barbara

barbara1234 profile image
barbara1234 in reply to barbara1234

Oh, I forgot. Sometimes turning on the radio to a nice PBS station helps me get back to sleep--

Barbara

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