Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,269 members • 37,944 posts

All posts for June 2014

Does anyone have experience of taking NSAIDs with Pred?

Hi After several years of slowly slowly slowly reducing Pred, almost always with worsening of pain, stiffness and tiredness that lasted several months, my...

Hi After several years of slowly slowly slowly reducing Pred, almost always with...

mk14

•10 years ago

8 Replies

Dark Marks on Skin and Bloodshot Eyes, anyone?

I am wondering if anyone else has noticed the following after prolonged Prednisone use ( about a year and a half): I have these 3 dark marks, resembling...

I am wondering if anyone else has noticed the following after prolonged Predniso...

duchessrenee

•10 years ago

5 Replies

PMR-GCA Scotland Glasgow Meeting

PMR-GCA Scotland are holding an informal drop in meeting for people in the Glasgow area to explore the interest in setting up a local support group. This...

PMR-GCA Scotland are holding an informal drop in meeting for people in the Glas...

sara4

•10 years ago

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Has anyone received confirmation of their attendance at the PMRGCAuk AGM?

I haven't so I hope it's OK to just turn up without a ticket.

Badgergirl

•10 years ago

14 Replies

Trying to avoid steroids

Hello, I'm new to the forum. I haven't had a diagnosis from a doctor but my acupuncturist and chiropractor both think I have PMR. I had blood tests done and...

Hello, I'm new to the forum. I haven't had a diagnosis from a doctor but my acup...

redavenger

•10 years ago

22 Replies

Has anyone been referred to an Immunologist.

My Proteins are low, when I was first told this, about a year ago, I couldn't understand it as I thought I had a good intake of protein in my diet but I did up...

My Proteins are low, when I was first told this, about a year ago, I couldn't un...

Dorene

•10 years ago

6 Replies

Nasal congestion

Hi, new to forum. Diagnosed with GCA and PMR 6 yr. ago. Being maintained on 5mg. Pred. for awhile with only minor flares. About two months ago developed pain...

Hi, new to forum. Diagnosed with GCA and PMR 6 yr. ago. Being maintained on 5mg....

Mimijma

•10 years ago

6 Replies

New Design of HealthUnlocked Beta Version

I've always liked change as it keeps everything fresh, inspirational and motivates people to get involved. The new design is no different. It's extremely easy...

I've always liked change as it keeps everything fresh, inspirational and motivat...

Skinnyjonny

•10 years ago

1 Reply

new site

sorry but I don't like the new version can we go back to the previous one please

kingharold11

•10 years ago

8 Replies

Referd to ENT for temple inflammation ?

My gp has referd me to ENT to see if they can find out it there is any inflammation in my temples just wandering if anyone else has been down this root with...

My gp has referd me to ENT to see if they can find out it there is any inflammat...

mabs786

•10 years ago

10 Replies

I've been reducing from 60mg prednisolone, and 8 months later I'm down to 20mg, but keep getting tenderness in temple area,

sore neck / shoulders and eyes are always playing up! I'm never sure when to call the doctor when I get the tenderness, is it normal to get this tenderness and...

sore neck / shoulders and eyes are always playing up! I'm never sure when to cal...

heli13

•10 years ago

6 Replies

Not really a question, just a wee update

Ah, the joys of the ups and downs of pmr! Have had an interesting couple of weeks to say the least! A fortnight ago, on my 4th day on 15mg of pred down from...

Ah, the joys of the ups and downs of pmr! Have had an interesting couple of we...

mamma1027

•10 years ago

8 Replies

I HAVE JUST SPENT AN HOUR IN A WHEELCHAIR ( WAITING FOR A HIP REPLACEMENT). EMULSIONING, I AM EXHAUSTED AND HAVE BEEN PHYSICALLY SICK. WHY?

albatross

•10 years ago

9 Replies

GCA and bone scans

I have had GCA for 18months plus I take all the necessary drugs including ones for the bones had 2 fractured ribs and an embolism 6 months ago all seems ok now...

I have had GCA for 18months plus I take all the necessary drugs including ones f...

Vpankhurst

•10 years ago

6 Replies

Omeprazole and other drugs

I have been told I have 'silent reflux' which gives me a dry cough, this has ruined my life for the past 15 years (another story) and I also take drugs for...

I have been told I have 'silent reflux' which gives me a dry cough, this has rui...

exDancer

•10 years ago

8 Replies

Inflamed eye lid

Reduced my preb and got swelling on upper eye lid. Concerned.

Shandon1

•10 years ago

5 Replies

What is normal ESR reading?

I am on 3.5 mg pred, and have ESR of 24, I thought this was quite good?

geater16393

•10 years ago

8 Replies

Reducing medication

Am currently on 8mg pred and the rheumy wants me to come down 1mg every 4 weeks. ESR has been 2 for last 7 months. However, just going to 7mg and my body is...

Am currently on 8mg pred and the rheumy wants me to come down 1mg every 4 weeks....

tourdefrance

•10 years ago

8 Replies

Latest Hospital Consultation

I saw the Rheumy Nurse last Tuesday have been on 10mg Pred for the last 4 months I described my various aches and pains tiredness dizziness and wobbling...

I saw the Rheumy Nurse last Tuesday have been on 10mg Pred for the last 4 months...

Tweetiepie

•10 years ago

15 Replies

LO.I have been trying to keep active most the day, just log on the Forum seems to have gone bolistic after the week end. Advice if possible?

I have used the Soft shoe Shuffle down method posted by PMRpro, down from 12.5 to 10mg. Apart from muzzy head achey shoulders not to bad.I Have a Drs...

I have used the Soft shoe Shuffle down method posted by PMRpro, down from 12.5 t...

daveD

•10 years ago

2 Replies

The mask is slipping and I am not doing very well

I thought that I was coping quite well with my PMR/GCA but after a year of this each flare up seems to get worse. I am currently finding the pain in my legs...

I thought that I was coping quite well with my PMR/GCA but after a year of this ...

Classicmike

•10 years ago

17 Replies

change of medication

have seen my rheumatoid consultant today and has told me to stop the methotrexate and start taking 10mg of Leflunomide a day as he says the methotrexate is not...

have seen my rheumatoid consultant today and has told me to stop the methotrexat...

Vpankhurst

•10 years ago

8 Replies

Subconjunctival Hemorrhage in Eye

Hi. Have GCA and PMR. Diagnosed in November 2013. Had it since April 2013. Now taking 9 mg Pred. Part of my left eye looks as if it is filled with blood....

Hi. Have GCA and PMR. Diagnosed in November 2013. Had it since April 2013. Now t...

Asbeck

•10 years ago

8 Replies

Hi my name is mussarat I have had a raised inflammatory markers for the last six months which my gp has not been able to get to the bottom o

mabs786

•10 years ago

33 Replies

Doing ok

Just to update - still reducing using the snail pace method 1 mg a month Dare I say it is working well - now on 3.5mg! Have taken paracetamol a few days when...

Just to update - still reducing using the snail pace method 1 mg a month Dare I...

suzieh

•10 years ago

16 Replies

Hi, Does anyone know if I should have had a scan or xray after five years with GCA? Bloods are good is the standard answer to all questions!

I am on 3mg pred and 20 weekly of methotrexate. The fatigue and aching are always around even with the "cure you" physio I have been given. Thankyou everyone.

I am on 3mg pred and 20 weekly of methotrexate. The fatigue and aching are alway...

5lupins

•10 years ago

11 Replies

where is everybody?

I have noticed that there doesn't seem to be much activity on here is it the weather or is everybody on holiday?

I have noticed that there doesn't seem to be much activity on here is it the wea...

kingharold11

•10 years ago

17 Replies

Lowering preb

Lowered preb from 12.5 to 10mg, but stye forming and a little pain. Any connection?

Lowered preb from 12.5 to 10mg, but stye forming and a little pain. Any connecti...

Shandon1

•10 years ago

1 Reply

Trying to deal with dry skin

Is anyone dealing with large patches of dry skin, which peel? I have one of these, on the side of my face and a large patch on my left thigh above my knee....

Is anyone dealing with large patches of dry skin, which peel? I have one of the...

Whittlesey

•10 years ago

9 Replies

I was diagnosed with PMR. Aug. 2013, I started on 25mgs pred. and at present am taking 11mgs this into my second week after taking 12.5mgs

for 8 weeks. since taking 11mgs have had left Groin ache and slight back pain same side, could this be withdrawal symptons of pred. I have had PMR. now for 9...

for 8 weeks. since taking 11mgs have had left Groin ache and slight back pain sa...

Lionking50

•10 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2014

Does anyone have experience of taking NSAIDs with Pred?

Dark Marks on Skin and Bloodshot Eyes, anyone?

PMR-GCA Scotland Glasgow Meeting

Has anyone received confirmation of their attendance at the PMRGCAuk AGM?

Trying to avoid steroids

Has anyone been referred to an Immunologist.

Nasal congestion

New Design of HealthUnlocked Beta Version

new site

Referd to ENT for temple inflammation ?

I've been reducing from 60mg prednisolone, and 8 months later I'm down to 20mg, but keep getting tenderness in temple area,

Not really a question, just a wee update

I HAVE JUST SPENT AN HOUR IN A WHEELCHAIR ( WAITING FOR A HIP REPLACEMENT). EMULSIONING, I AM EXHAUSTED AND HAVE BEEN PHYSICALLY SICK. WHY?

GCA and bone scans

Omeprazole and other drugs

Inflamed eye lid

What is normal ESR reading?

Reducing medication

Latest Hospital Consultation

LO.I have been trying to keep active most the day, just log on the Forum seems to have gone bolistic after the week end. Advice if possible?

The mask is slipping and I am not doing very well

change of medication

Subconjunctival Hemorrhage in Eye

Hi my name is mussarat I have had a raised inflammatory markers for the last six months which my gp has not been able to get to the bottom o

Doing ok

Hi, Does anyone know if I should have had a scan or xray after five years with GCA? Bloods are good is the standard answer to all questions!

where is everybody?

Lowering preb

Trying to deal with dry skin

I was diagnosed with PMR. Aug. 2013, I started on 25mgs pred. and at present am taking 11mgs this into my second week after taking 12.5mgs

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