Ah, the joys of the ups and downs of pmr! Have had an interesting couple of weeks to say the least! A fortnight ago, on my 4th day on 15mg of pred down from 20mg (as badgered by my gp) I went into a complete tailspin. Felt really odd all day, decidedly queasy by the evening and then from 1.00 am I vomited (sorry) every hour until 10.00 am, complete with cold sweats, shakes and nearly passing out. I actually did pass out in bed and woke up to find I had been ill all over myself. It may have been a bug but I had my suspicions it could have been due to withdrawal, so when I felt able to keep food down I went back to 20mg, and within 12 hours felt on the mend. Had a lovely couple of days away by the sea, and I coped really, really well - managed to do a fair bit of walking on the flat without any side effects apart from tiredness. So all was going well until this Wednesday, when I somehow completely forgot to take my pred! I was starting to ache in the evening, and it still didn't twig with me until the middle of the night! Took my usual dose at 5.30 am yesterday morning and within hours was feeling a lot less achey. Trouble is today I feel absolutely awful - stiff and painful hips and thighs, shoulders and upper arms. I was due to go back to the docs today and fortunately I saw the lovely gp who initially diagnosed me. I explained what had been going on and he said "You had withdrawal symptoms. Right! Stick on the 20mg for the time being. You know your body. You know how you feel. You can decide when you want to start to reduce, and by how much. Cut tablets in half or quarters if you wish, do whatever suits you. Everyone is different, and it's no good being told or made to reduce if it's going to throw your body out of whack!" Well, wow. I could have cried with joy. He explained that it's no good being on high doses of steroids for the longterm because of the side effects, but then he said it's no good taking an insufficient dose which causes a whole new set of grief. He's given me chewable calcium/vitamin D too. So I've come home - stiff, sore but decidedly happier than before I went out. All gp's should be like this - they need to listen to their patients.
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