I saw the Rheumy Nurse last Tuesday have been on 10mg Pred for the last 4 months I described my various aches and pains tiredness dizziness and wobbling nearly it the ceiling when she touched my arms. My feet ankles and legs very swollen she was very concerned about them and went and got the consultant who asked lots of questions but cant say they had any solutions. I am taking a 40mg water tablet which cant take if I have hospital appointment. The best I can say is they are holding the line. My ESR went from 9 to 33 and the last two have been 31 Nurse thinks swollen legs etc are having an effect anyone else ever had this.?I was sent for blood tests ESR CRP.Kidneys,Vitamin D ,Diabetes and Thyroid as she thought my left eye was different (This is the one I lost to GCA)would be sent my usual report if anything was urgent she would phone me of anything was Urgent No phone call so far so living in hope.Staying on 10mg till October.
I have put on a lot of weight since last September am gutted as I had lost 49lbs and because I am housebound have not been able to get .there I do speak to the WW leader from time to time and she say several members have said they will pick me up and bring me back home which is lovely and very kind of them. Hope it works has anyone followed a weight reduction plan while on pred and won . Finngers crossed it works or I will be so demoralised Once again thanks for all your support and best wishes to all on this forum