Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2014

medium strength headache

hi, diagnosed pmr January 2014. last few days medium strength headache, weakness and tremor to hands. is this side effect of prednisolone. on 12.5mg at moment x

hi, diagnosed pmr January 2014. last few days medium strength headache, weakness...

dillydally1

•10 years ago

8 Replies

Prednisone sparing drugs

I have been diagnosed with GCA & PMR. I need to sign up in the US for Medicare, the old age insurance. Different plans pay for different drugs. I see my Rheumy...

I have been diagnosed with GCA & PMR. I need to sign up in the US for Medicare, ...

Asbeck

•10 years ago

18 Replies

Does any one find doctors reluctant to think symptons are unrelated if bloods are ok ?

5lupins

•10 years ago

7 Replies

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Has anyone had problems wih walking? Presumably a side-effect of prednisolone?

Last week we had three nights away from home, going by train to York: six hours ech way. We had a short walk over a bridge to the hotel, which should have...

Last week we had three nights away from home, going by train to York: six hours ...

Trenny

•10 years ago

35 Replies

Just been diagnosed with PMR

Hi just been diagnosed with PMR and am really struggling to come to terms with it :( and the pain. I'm on 30mg a day and seems to be making very little...

Hi just been diagnosed with PMR and am really struggling to come to terms with i...

Pin66

•10 years ago

12 Replies

How long could I have left it before going back to the higher dose

I have had PMR /GCA for 10 months, symptoms stable. I have been reducing from 40 mg to 12.5 I have just reduced again to 10 mg 6 days ago. I have been getting...

I have had PMR /GCA for 10 months, symptoms stable. I have been reducing from 40...

Freeman12

•10 years ago

7 Replies

nitrofurantoin

A few weeks ago I mentioned on here that I have commenced nitrofurantoin for a water infection didn't want to take them because I remember having them before...

A few weeks ago I mentioned on here that I have commenced nitrofurantoin for a w...

kingharold11

•10 years ago

18 Replies

How do I get a free six-monthly eye test on the NHS if I have GCA?

On a recent post someone said that the NHS allowed free six-monthly eye tests if one had GCA. Specsavers was mentioned as being aware of this. I 'phoned my...

On a recent post someone said that the NHS allowed free six-monthly eye tests if...

Trenny

•10 years ago

16 Replies

Puffy eyes

I've been on pred for four weeks now, and my face is definitely a little rounder (but no weight gain yet, still 8.5 stone) but last night my eyes puffed up and...

I've been on pred for four weeks now, and my face is definitely a little rounder...

mamma1027

•10 years ago

21 Replies

Predniselene

Feet going really numb on 15mg pred. Is there a connection? Seeing doc on Monday!

Feet going really numb on 15mg pred. Is there a connection? Seeing doc on Monday...

Shandon1

•10 years ago

3 Replies

more cyclo

Got call tonight ive had flare of eyesight admitted lasr weekend for 2 nts to hospital.Told ive got to have 2nd course of 6 sessions of cyclo.and I ve got to...

Got call tonight ive had flare of eyesight admitted lasr weekend for 2 nts to ho...

mickt

•10 years ago

7 Replies

Biopsy

Had mine on 8th April.. still not had results yet....!! Around the site where it took place i am numb above and below the ear going into my face.. is this...

Had mine on 8th April.. still not had results yet....!! Around the site where i...

Jan1961

•10 years ago

3 Replies

Can't do anything nice with PMR

A kind friend just took me for afternoon tea at a posh London hotel. After travelling into London and back as well as sitting at a table for hours I am now in...

A kind friend just took me for afternoon tea at a posh London hotel. After trave...

Badgergirl

•10 years ago

34 Replies

GABAPENTIN

I have been given Gabapentin by Consultant for a lower back pain, which he said was not connected to PMR. I am waiting for an MRI scan, but in the meantime...

I have been given Gabapentin by Consultant for a lower back pain, which he said ...

hwigston

•10 years ago

13 Replies

Adrenal Liquescence

During a discussion with my physiotherapist today we chatted about Adrenal Liquescence which I understand provides homoeopathic aid in support and potentised...

During a discussion with my physiotherapist today we chatted about Adrenal Lique...

Skinnyjonny

•10 years ago

4 Replies

Pred Anniversary - Thanks to HealthUnlocked

It's my 1st anniversary being on steroids and it's hard to believe all the weird and wonderful things which have occurred over the last year. The human body is...

It's my 1st anniversary being on steroids and it's hard to believe all the weird...

Skinnyjonny

•10 years ago

3 Replies

Does anyone else get allergic reactions from vitamin supplements?

I've had PMR for four years and am down to 4mg of Medrol with the odd flare now and then. I am getting rather fed up because I would like to take a...

I've had PMR for four years and am down to 4mg of Medrol with the odd flare now ...

Loco99

•10 years ago

1 Reply

sleep

I seem to be asking so many questions because I am new to pmr. I have been a bad sleeper for many years. since the prednisolone it as got worse, is this quite...

I seem to be asking so many questions because I am new to pmr. I have been a bad...

dillydally1

•10 years ago

15 Replies

have bought tablet box to help org my tablets.

not a major problem,but since my intake of tablets is on the up,pmr, underactive thyroid,+ others.I hoped to set a full days tablets out at night ready for a...

not a major problem,but since my intake of tablets is on the up,pmr, underactive...

daveD

•10 years ago

11 Replies

dogwalker

Does anyone have swollen ankles?. I have been having this problem for about a fortnight. I am reducing steroids gradually from 50 and at the moment am on 40...

Does anyone have swollen ankles?. I have been having this problem for about a fo...

dogwalker

•10 years ago

4 Replies

Despondent

After over two years on pred following my diagnosis of PMR and GCA I had finally broken the 10mg barrier in March (from a starting base of 60mg) and I was...

After over two years on pred following my diagnosis of PMR and GCA I had finally...

GreyOwl

•10 years ago

19 Replies

eating

Hi, everyone out there. Do any of you feel like I do on prednisolone. I was on 20, then 15 now 12.5. I seem to want to eat all the time, this usually is worse...

Hi, everyone out there. Do any of you feel like I do on prednisolone. I was on 2...

dillydally1

•10 years ago

18 Replies

tired again

just finished the nitrofurantoin feel exhausted have got the runs. I know its a waiting game but just wish I could feel a bit less tired. woke up in the night...

just finished the nitrofurantoin feel exhausted have got the runs. I know its a ...

kingharold11

•10 years ago

6 Replies

do you think this could be flair up?thanks ritter

Hi Girls & boys have been really fit the last few months,down to 8/5mgs the last week,but started aching really bad and very hot especially at night the normal...

Hi Girls & boys have been really fit the last few months,down to 8/5mgs the last...

ritter

•10 years ago

2 Replies

Re Tizanidine and GCA

Hi everyone, I looked at the studies at the NIH for GCA. There is a new one. Link: http://www.ncbi.nlm.nih.gov/pubmed/23663684 from the text: "These...

Hi everyone, I looked at the studies at the NIH for GCA. There is a new one. L...

Whittlesey

•10 years ago

Be the first to reply

Tizanidine -- reduces vasospasm significantly

Hello Everyone, posting this information I have just found from NIH, which is the National Institute of Health in the U.S. a credible government agency:...

Hello Everyone, posting this information I have just found from NIH, which is th...

Whittlesey

•10 years ago

Be the first to reply

Back to hospital for 2 nights.Had second flare gca .

I had a second flare of eyesight problem,grey curtain over my other eye .Had last flare in left eye latest in right eye.Lasted 30 secs to a minute on 2...

I had a second flare of eyesight problem,grey curtain over my other eye .Had las...

mickt

•10 years ago

5 Replies

RAGNAR METHOD FOR REDUCING PREDNISOLONE

Can someone let me have the Ragnar formula for reducing pred please. I am at present on 8 mg and have had 3 flares when trying to reduce. I have been on pred...

Can someone let me have the Ragnar formula for reducing pred please. I am at pr...

hwigston

•10 years ago

5 Replies

Prescribed Tizanidine for migraine headaches

Hi Everyone, Wondering if anyone has used tizanidine for pain? My migraine doctor recently prescribed it for the combination headaches I now get, which seem to...

Hi Everyone, Wondering if anyone has used tizanidine for pain? My migraine docto...

Whittlesey

•10 years ago

14 Replies

Newly diagnosed with GCA does anyone have experience of temporal artery biopsy and the ultrasound option?

The literature says it's not dependent on the treatment which I have started Does anyone know where it can be done, will travel?

The literature says it's not dependent on the treatment which I have started Doe...

EdithWales

•10 years ago

29 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2014

medium strength headache

Prednisone sparing drugs

Does any one find doctors reluctant to think symptons are unrelated if bloods are ok ?

Has anyone had problems wih walking? Presumably a side-effect of prednisolone?

Just been diagnosed with PMR

How long could I have left it before going back to the higher dose

nitrofurantoin

How do I get a free six-monthly eye test on the NHS if I have GCA?

Puffy eyes

Predniselene

more cyclo

Biopsy

Can't do anything nice with PMR

GABAPENTIN

Adrenal Liquescence

Pred Anniversary - Thanks to HealthUnlocked

Does anyone else get allergic reactions from vitamin supplements?

sleep

have bought tablet box to help org my tablets.

dogwalker

Despondent

eating

tired again

do you think this could be flair up?thanks ritter

Re Tizanidine and GCA

Tizanidine -- reduces vasospasm significantly

Back to hospital for 2 nights.Had second flare gca .

RAGNAR METHOD FOR REDUCING PREDNISOLONE

Prescribed Tizanidine for migraine headaches

Newly diagnosed with GCA does anyone have experience of temporal artery biopsy and the ultrasound option?

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