After over two years on pred following my diagnosis of PMR and GCA I had finally broken the 10mg barrier in March (from a starting base of 60mg) and I was slowly reducing till this week I was down to 7mg per day. I've been looking forward to the day when I can see the side-effects of this nasty medication disappearing (three months ago was told the steroids had given me Type 2 Diabetes) but over the last few weeks my joint and muscle pain in shoulders, hips and knees had returned, together with painful headaches around the temples and eyes and tiredness becoming even more extreme so that I was sleeping the large part of the day if I gave in to the tiredness.
In the end I made the appointment with my GP and today he's told me to go back up to 10mg per day, at the same time he's taken blood to test for inflammation markers.
I'm so down now, I really thought I was on the way to getting over this illness. Will I ever get off the cursed steroids?