tired again: just finished the nitrofurantoin feel... - PMRGCAuk

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tired again

kingharold11 profile image
6 Replies

just finished the nitrofurantoin feel exhausted have got the runs. I know its a waiting game but just wish I could feel a bit less tired. woke up in the night wet through with sweat had to get up and change haven't done that for about 2 years hope I'm not getting a flare as well Wendy

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kingharold11
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PMRpro profile image
PMRproAmbassador

Being ill is enough to cause a flare so if it carries on maybe a tick more pred for a few days?

Greensleeves profile image
Greensleeves

Hi Wendy , I'm currently going through the same with constant uti's , Nitrofurantoin and drenched with sweat. It's awful , currently on 6mg Pred. Hope you feel better soon. Take care , xx

kingharold11 profile image
kingharold11 in reply toGreensleeves

I've been on 5mg for over six months on rheumys instructions was hoping to reduce but these uti's and Nitrofurantoin are so awful I can't see it ever happening. So lacking in any kind of energy sweating all of the time I have upped the pred for a few days. When I was in hospital last year for a combined pmr/collapse bout the neurologist I saw told me that in the case of any infection I should increase the pred dose for 3 days then go back to where I was before.It doesn't mean you have to go through the reduction bit short increases don't seem to affect the general scheme. Take care xxxx

Greensleeves profile image
Greensleeves

That's interesting Wendy . I'm feeling rough with UTI again and don't want to go back say 10mg Pred again and start reducing (which I've done twice now ). But if I went up for 3 days and then back to where I was that doesn't seem as bad. Hope your infection's going now. Take care. xxx

Trenny profile image
Trenny in reply toGreensleeves

Did this work (ie going up for three days and then back)?

Greensleeves profile image
Greensleeves in reply toTrenny

Hi Trenny , yes it did work. It's a relief actually as I know I can do this again if necessary rather than going back up to say 10mg and restarting the slow reduction. Good luck. x

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