My hip problems - started 5 years ago with a 20 month period completely free of symptoms until 2 years ago. X rays and MRI confirm bursitis, tendon damage etc and very slight damage in the right hip joint.(I am 74). I have not been dx.with PMR because normal bloods but I have been on prednisolone since last October with two attempts to reduce at a somewhat fast rate advised by the GP coming to a halt at 8/9 mg. because of muscle pain and general malaise Subsequently referred to rheumatologist, a slower rate was advised and on a second appointment three months later a different rheumy advised1 mg per month reduction from the 10mg daily I was on by then - slower still They want to see how I am without the steroids as they don't seem to understand what "can hardly get up the stairs/hips seized up/walk with stick/aching muscles means" (!!) Unfortunately, my GP recently upped the dose to 20 mg for five days to deal with an episode of gout in my right foot.
My question now is how fast can I reduce back to the 8mg had got to 2 weeks ago? GP says 1 mg reduction a week. An attempt to get advice from rheumatology failed because the nurse only took in half the tale. At this rate, in July, when the next blood test and subsequent rheumy appointment comes up I will be on more and not less than I was when I saw the rheumy last and god only knows when I'll get a diagnosis and/or come off steroids.
I have decided to try 10% reduction each week til I get back down to the 8mg I as on before the gout and then revert to1 mg a month reduction but would welcome input from this forum I also have Parkinsons which became obvious the same time as this all started up following a car accident but having tried changing PD meds the consensus is that the problem is not down to the PD which you wouldn’t know I had unless I told you although I don't suppose it helps.