I was diagnosed GCA Jan 2013 started with 60mg now down to 5. Taken down too quickly at start. Have never been completey headache free. Get a lot of pressure head top front of head at the sides and sometimes near temples. uncomfortable strange feeling creeping feeling too. Have been told that it is the steroids causing these and not GCA but do not understand why they dont' go as I go down . Have sometimes got rid of them on higher doses but am told to continue going down. All very strange. My blood tests have with one exception near the beginning 'within normal range'. Anyone else had this problem. Would appreciate your help. Thankyou
Last edited by littlewren
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