Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,316 members • 38,052 posts

All posts for June 2013

Back up to 15mgs of pred AGAIN!

Hi everyone , just thought I would let you all know that I am still here , well having got down to 11mg my head pains and jaw pains were so bad I rang the...

Hi everyone , just thought I would let you all know that I am still here , well ...

lynabelle

•11 years ago

9 Replies

Difficulty in reducing steroid dosage Methotrexate being considered

Hi I am writing on behalf of my mum, who is 73 years of age and was diagnosed with PMR nearly 4 years ago. Mum has had a number of flare ups of PMR, where her...

Hi I am writing on behalf of my mum, who is 73 years of age and was diagnosed wi...

lesm

•11 years ago

8 Replies

Tinnitus and gca is there a connection?

I have suffered from tinnitus for many years I wear 2 hearing aids to reduce the sounds. In The last few months my tinnitus has increased And moved towards...

I have suffered from tinnitus for many years I wear 2 hearing aids to reduce th...

ianR

•11 years ago

4 Replies

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GCA flare

Hi all just like to update you. I rang doctors at 8am Doctor phoned back 8.30 gave me an appointment for 10.50 to have bloods taken and see GP after, it looks...

Hi all just like to update you. I rang doctors at 8am Doctor phoned back 8.30 g...

Dorene

•11 years ago

5 Replies

How long do flares usually last?

I have been on Pred. for 6 months , having started on 15mgs. I got down to 9.5 at the beginning of May but then had a flare and have slowly been increasing my...

I have been on Pred. for 6 months , having started on 15mgs. I got down to 9.5 a...

suzy1959

•11 years ago

3 Replies

Is this a flare up of PMR or GCA

I was diagnosed with temporal arteritis in Feb 2011after a biopsy, PMR a few days later, put on 60mg prednisolone to start with and managed to gradually reduce...

I was diagnosed with temporal arteritis in Feb 2011after a biopsy, PMR a few day...

Dorene

•11 years ago

3 Replies

Anybody experienced hand /fingers cramps after taking Pred I'm on 60mg/day and has just started having them, fingers lock, co-incidence?.

bluespot

•11 years ago

28 Replies

Have managed to reduce dose - feeling fine again!

Now into 3rd week of reducing to 10 mg (from 11mg); week 1 ok really as taking 10mg one day; 11 next; week 2 felt very shaky and faint...

Now into 3rd week of reducing to 10 mg (from 11mg); week 1 ok really as ...

suzieh

•11 years ago

8 Replies

Can some of the pain also be due to statins?

I have been having typical PMR pain - although with normal blood results, and am on prednisolone. Initially I had dramatic improvement, but recently the...

I have been having typical PMR pain - although with normal blood results, and am...

missrat

•11 years ago

5 Replies

Are brittle nails common, either on prednisolone or with PMR?

missrat

•11 years ago

6 Replies

Does anyone else have bloodshot eyes

Hi for the last 2.5 months I have had continual bloodshot eyes. I have mentioned it to GP an rheumy, but they never seem concerned or explain why they are...

Hi for the last 2.5 months I have had continual bloodshot eyes. I have mentioned...

Runrig01

•11 years ago

18 Replies

Is the tiredness due to the PMR, the steroids, the depression or a mixture of the lot? How do you handle it?

Sometimes I think it's rather like 'The Dementors' in Harry Potter sucking the soul out of a person - only I feel as if someone has sucked my physical energy...

Sometimes I think it's rather like 'The Dementors' in Harry Potter sucking the s...

missrat

•11 years ago

12 Replies

has any one noticed a problem with their hair since having PMR and being on steroids.

I have had PMR for 6.5 years and have been on steroids for 2.5 yrs. MY hair is brittle and lifeless and generally looks dreadful. I also find life difficult...

I have had PMR for 6.5 years and have been on steroids for 2.5 yrs. MY hair is b...

cynbil

•11 years ago

21 Replies

why so shaky feeling when reducing ?

In my 2nd week of reducing from 11mg to 10mg - going well so far, only a few shaky moments, until today - ; I felt fine when I got up but mid morning started...

In my 2nd week of reducing from 11mg to 10mg - going well so far, only a few sha...

suzieh

•11 years ago

19 Replies

ESR

hi everyone im so confused my blood results for ESR two weeks ago were 35 and the one this week is 2 which I don't understand as I still feel the same , does...

hi everyone im so confused my blood results for ESR two weeks ago were 35 and th...

steph1

•11 years ago

4 Replies

Hunger

Hi pretty new to this but getting very down on weight management. I have never been thin and have had to battle with diets for years but since the steroids(...

Hi pretty new to this but getting very down on weight management. I have never b...

Hidden

•11 years ago

12 Replies

Did anyone suffer with mucus on chest and shallow breathing, and cough?

geater16393

•11 years ago

4 Replies

when will weight gain go?

geater16393

•11 years ago

6 Replies

I am new to this.

I am female & 65. I am very suspicious that I have PMR but not yet diagnosed. I am suffering a lot of the symptoms of PMR and awaiting blood tests for...

I am female & 65. I am very suspicious that I have PMR but not yet diagnosed. ...

Cwmidwal

•11 years ago

3 Replies

Another new member so thought I would tell my story. Now the wrong side of 70, just, PMR reared its head in 2009, started off on 15mg Pred

reduced down to 1mg by the middle of last year when I came off the pills and thought that was that. March this year the PMR systems returned together with head...

reduced down to 1mg by the middle of last year when I came off the pills and tho...

bluespot

•11 years ago

4 Replies

Hello I am IanR I am new here. I have been on 40mg preds for a month. I was diagnosed with gca last Thursday

I had a flare up yesterday . I rang the pmrgca helpline and spoke with Jennifer we agreed I should go to A+E the Dr there increased preds from 40to50 for...

I had a flare up yesterday . I rang the pmrgca helpline and spoke with Jennifer ...

ianR

•11 years ago

7 Replies

New to forum

Hello. I'm fairly new. Diagnosed April 2013 after blood tests. Had aches. Pain generally from neck . Down back and pelvis. Thought it was old age (62).been...

Hello. I'm fairly new. Diagnosed April 2013 after blood tests. Had aches. Pai...

annihami

•11 years ago

6 Replies

Fed up...difficulty reducing without getting symptoms back.

Feeling really cheesed off, had gradually come down from 60 mg daily and had reached 30 and then was to go to 20. Got headaches, not as bad as when GCA...

Feeling really cheesed off, had gradually come down from 60 mg daily and had rea...

Dovelady

•11 years ago

13 Replies

North West Kent PMRGCAuk Support Group - August Meeting

Hi Everyone I have found a venue in Tonbridge at the United Reform Church which is about 100 yards from Tonbridge Railway station. I am going to view the...

Hi Everyone I have found a venue in Tonbridge at the United Reform Church whi...

pennyw

Administrator•11 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2013

Back up to 15mgs of pred AGAIN!

Difficulty in reducing steroid dosage Methotrexate being considered

Tinnitus and gca is there a connection?

GCA flare

How long do flares usually last?

Is this a flare up of PMR or GCA

Anybody experienced hand /fingers cramps after taking Pred I'm on 60mg/day and has just started having them, fingers lock, co-incidence?.

Have managed to reduce dose - feeling fine again!

Can some of the pain also be due to statins?

Are brittle nails common, either on prednisolone or with PMR?

Does anyone else have bloodshot eyes

Is the tiredness due to the PMR, the steroids, the depression or a mixture of the lot? How do you handle it?

has any one noticed a problem with their hair since having PMR and being on steroids.

why so shaky feeling when reducing ?

ESR

Hunger

Did anyone suffer with mucus on chest and shallow breathing, and cough?

when will weight gain go?

I am new to this.

Another new member so thought I would tell my story. Now the wrong side of 70, just, PMR reared its head in 2009, started off on 15mg Pred

Hello I am IanR I am new here. I have been on 40mg preds for a month. I was diagnosed with gca last Thursday

New to forum

Fed up...difficulty reducing without getting symptoms back.

North West Kent PMRGCAuk Support Group - August Meeting

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