Hi everyone , just thought I would let you all know that I am still here , well having got down to 11mg my head pains and jaw pains were so bad I rang the doctor rather than go to a&e as I did not have the energy to wait around for hours.
Am I having a flare or is it because I am coming down on the steroids ?
I asked, the reply was stay on 12 mg for 4 weeks , so I upped the dose by 1mg and it made no difference so this morning I went back to 15mg and I am beginning to feel better all ready.
Can't wait to see the rhemy in 2 weeks who wanted me to be down to 7.5mg by now, boy does he have a shock coming to him, do these doctors not know that we are all different and what works for one person , does not always work for another. I have so much to tell him , got down to 9.5 , doctor put me back to 15 as my esr went up , then came down to 11 and back again to 15.
My daughter said the other day that she did not think they put me on a high enough dose in the beginning , they put me on 30mg what do you think?