fibroscan tomorrow

[NotorDJP]

hi all. PBC diagnosed in 2014. Been on urso since then and been with a gastroenterologist that basically just followed my disease with blood tests. Fibroscans were not really a major thing when I was diagnosed and my doctor really never used them. He has retired and I’m going to a new practice that wants one. I’m nervous because this is the first imaging I’ve had other than some other incidental stuff at the ER since I’ve been diagnosed. My symptoms are about what they have been other than my ALP being up a little at my last blood draw, putting on some weight and just getting older everything is fairly stable. I’m scared all the sudden , one because they just called and said they wanted the scan, and because it’s easy to lull yourself into a sense of this isn’t really then something like this happens. I’m scared I’ve progressed a lot, I may have cancer, maybe I should have had a scan before this, all sorts of things. I’ve had thyroid cancer and lots of other stuff. Just needing a little encouragement.

[Juhainar]

I haven’t had a FibroScan, but I did undergo a biopsy, which wasn’t a very pleasant experience. My doctor mentioned that FibroScan is just an imaging test. As long as your blood work is normal, there’s no need to worry. Remember, managing stress and avoiding unnecessary worry are essential for supporting your body’s healing process, especially with autoimmune conditions.

[Flid]

most likely they are just setting a baseline - I was diagnosed 18 months ago and had a baseline test instead of a biopsy as my levels are not wildly high. This tech is only becoming widely available now but my hepatologist wants one every few years to keep an eye out for changes.

[NotorDJP]

I had all the initial diagnostic tests in 2014 biopsy etc. my alp never went to normal and is sitting in the high 200 to low 300 but has for awhile. Bilirubin and albumin are normal. Thanks for your response