first time on here: Hi! I am a 35 year old... - PBC Foundation

PBC Foundation

9,436 members8,156 posts

first time on here

PBC2014 profile image
0 Replies

Hi! I am a 35 year old female. I was diagnosed officially with PBC at age 25. At this point in life I had a biopsy and found out I was already stage 2-3 fibrosis. Jumping forward ten years later I am now at the last stage and officially at cirrhosis. I have many symptoms now caused by the cirrhosis. Enlarged spleen, very low White blood counts, red, and platelets because of the spleen being enlarged. I get sick more easily these days. I have a lot of muscle pain daily. I’m constantly fatigued. I have heart issues and take blood pressure medication to lesson the chance of liver cancer. I have always been a quite healthy individual, never a big drinker and always treated my body pretty well. It is hard to understand why I was unfortunate to have been diagnosed at such a young age. The doctors think because of how progressed it is, that I had to have been developing it as a young child. I haven’t been able to find anyone who understands the fatigue that cirrhosis causes. Everyone always says oh, we’re all tired. That’s just life. I believe this disease is different though. Being so young and dealing with disease has been very hard for myself and my family as well. My faith has shown me that God has a plan for this and continues to strengthen my marriage and my relationships with my child and family. I Look forward to hearing from others about their experiences. Thanks for taking the time to read.

Written by
PBC2014 profile image
PBC2014
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

If You Could Go Back in Time and Tell Yourself Something When You Were First Diagnosed with PBC, What Would It Be?

biopsy, but coming back down. I do have fatty liver and I've been actively working on making that...

I'm new here

This is because he has found that I have an enlarged spleen. I have been worrying about this since...

New here! Question about Diagnosis

on earth, and have been diagnosed with a number of things I don't really believe I have: epilepsy...

Not yet diagnosed. Referred to QE Birmingham, for first appointment. Blog Number 1.

that was being looked for). It had been noted I had an enlarged Spleen and ripples on my Liver. (no...

New here and feeling uninformed by my GP

I have just been diagnosed with PBC and have been reading through comments and suggestions. My GP...