Fribroscan : Hi couple questions had a... - PBC Foundation

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Fribroscan

cavi profile image
cavi
13 Replies

Hi couple questions had a Fibroscan last week the Doctor that did it at Q.E said result was 13.2 no idea what this means any idea just said no change from last one 2 years ago also does this type of scan detect Esophageal Varices Thanks for replies if any one knows Take Care Cavi

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cavi profile image
cavi
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13 Replies
Buddy2017 profile image
Buddy2017

No idea if it shows varices but I wouldn't have thought so as it shows the stiffness of the liver , I had a fibroscan a few years ago that was 13.5 but I was told I had a fatty liver ....I lost 2 stone and my reading came down to 7.5 . I'm suprised they didn't explain anything to you !

roseter profile image
roseter

On my first diagnosis I had a reading of 6 now up to 11 but still stage 2 so not a worry. I think once it reaches 15 you are stage 3. I've not heard that diet can reverse liver disease. Once its compromised you can't go back, or so I understood. You need to get them to explain.

Dinasmom profile image
Dinasmom in reply to roseter

Actually livers are remarkably regenerative. I am a RN with PBC. I was diagnosed at stage 1 with fatty liver disease four years ago. By losing 40 pounds and following a mostly vegetarian diet with only rare sugar and processed food my fibroscan four years later showed Stage 0 with no fatty liver disease. In fact the tech who did my scan told me I had one of the leanest livers she’d ever seen. We can’t cure PBC but in many cases we can successfully manage it.

Michi1 profile image
Michi1 in reply to roseter

I believed that too at first but with a major change in diet and exercise my scans have gone from 8.2 to 4.1 over five years. At my last doctor’s appointment I asked if it was possible I was reversing it and she said it can be done, but most people never make the changes they need to make. You CAN make a huge impact with your choices. Don’t give up!

roseter profile image
roseter in reply to Michi1

Why don't the specialists tell you this??I have actually lost 6 stone since diagnosis and have not improved my liver at all. I'm thoroughly confused

Michi1 profile image
Michi1 in reply to roseter

I would be happy to have a chat and fill you in on what I did. If you want to talk message me and we can figure out a time.

roseter profile image
roseter in reply to Michi1

Thank you so much but I'm due to see my specialist next week and will discuss with him

Michi1 profile image
Michi1 in reply to roseter

I meant to say congratulations on the weight loss. That’s a huge accomplishment! Congratulations!

Kakey profile image
Kakey in reply to roseter

That's because diet doesn't treat PBC. Fibrosis can be reversed if it's cause is removed, which is why losing weight helps with some liver disease.

roseter profile image
roseter in reply to Kakey

Thank you, that makes more sense

MarilynCr profile image
MarilynCr

my doctor does the fibroscan too. I’ve never been given a number like that. I’m just told what stage I’m in. Perhaps you can call their office and ask what stage the scan shows. I hope you get your mind settled wish I understood the number thing. Can you google perhaps “fibroscan number whatever yours was and say what stage of PBC does this show…

Blue-Mom profile image
Blue-Mom

The fibroscan does not find varices - you need an endoscopy for that. Fibroscan looks at the stiffness and fattiness of the liver.

cavi profile image
cavi

Thanks for all your replies Take care all x

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