Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for July 2017

Frustrated With Doctors!

Hello! I live in the United States and have been diagnosed with PBC for about 4 years. From the beginning my symptoms have been brain fog and extreme fatigue...

Hello! I live in the United States and have been diagnosed with PBC for about 4...

sschrap

•7 years ago

20 Replies

What were your symptoms

Hello everyone. I am a 35 year old female who has been suffering from very loose stools yellow for 4 months. My legs swell and my feet ache and my hands ache...

Hello everyone. I am a 35 year old female who has been suffering from very loose...

Lucycalifornia

•7 years ago

9 Replies

Living with PBC

Hi folks. I have been living with pbc since 2009 and doc says i probably have had it since before then. The symptoms are hard to live with but you learn how to...

Hi folks. I have been living with pbc since 2009 and doc says i probably have ha...

Sugardoodle

•7 years ago

5 Replies

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Incredibly painful liver biopsy

Had my biopsy a few days ago in California. No sedation offered. I would had refused anyway. Radiologist used midline approach right under sternum. He...

Had my biopsy a few days ago in California. No sedation offered. I would had r...

mike932

•7 years ago

11 Replies

Shivering at night

Hi just been diagnosed over phone with possible pbc (apparently somebody made mistake with blood test) when I asked what is that dr told me to google it - he...

Hi just been diagnosed over phone with possible pbc (apparently somebody made mi...

Cazzie56

•7 years ago

13 Replies

Melatonin for sleep

Hi all. I was just wondering if anyone takes Melatonin for sleep. I asked my Dr. and of course he never gives me an answer. Would be happy for any input...

Hi all. I was just wondering if anyone takes Melatonin for sleep. I asked my ...

LorraineLouise

•7 years ago

14 Replies

The Assistance Fund

Has anybody applied for help with prescriptions through this organization?

PBCTracy

•7 years ago

2 Replies

PBC and fibromalgia

Have had PBC for over 10 years and for past few months have been experiencing severe pain in shoulders, wrist, fingers and big toe in the morning which...

Have had PBC for over 10 years and for past few months have been experiencing se...

Gioielli

•7 years ago

11 Replies

For everyone who has stage 4 pbc

Could you please tell me How long do you have stage 4 cirrhosis ?❤️

Mysa1981

•7 years ago

14 Replies

Teeth

Has anyone had pro lens with their teeth? I have to have my last 2 molars on the top. 1 one each side, removed on the 8th and I'm waiting for the approval of 2...

Has anyone had pro lens with their teeth? I have to have my last 2 molars on the...

Y-now

•7 years ago

22 Replies

Confused

I had my fibroscan yesterday. I will see my liver Dr Monday. I have had a lot of issues going to work. A few months ago I put ion a claim for social security...

I had my fibroscan yesterday. I will see my liver Dr Monday. I have had a lot o...

Y-now

•7 years ago

9 Replies

High cholesterol

Hello, Anyone have high cholesterol and high blood pressure? How do you control it? My doctor prescribed me medication that lowered my cholesterol, but ended...

Hello, Anyone have high cholesterol and high blood pressure? How do you control ...

dolphinlover2020

•7 years ago

8 Replies

New Member

Yesterday I had my first appointment with a liver consultant who went above and beyond explaining my diagnosis, (picked up from a blood test due to another...

Yesterday I had my first appointment with a liver consultant who went above and ...

Alisonsewsalot

•7 years ago

6 Replies

New member

Hi my name is shell, I'm feeling quite confused at moment, my gp referred me to hosp because my liver enzymes were high, had lots of blood test and scan, was...

Hi my name is shell, I'm feeling quite confused at moment, my gp referred me to ...

Mnoye

•7 years ago

7 Replies

CymaBay Announces Positive Interim Results from Its Ongoing Low-Dose Phase 2 Study of Seladelpar in Patients with PBC

This looks promising! http://ir.stockpr.com/cymabay/press-releases/detail/403

Jo_Br

•7 years ago

17 Replies

Acupuncture

Has anyone tried acupuncture for PBC? I know that it is a treatment used for other autoimmune diseases. I am thinking of trying it.

Has anyone tried acupuncture for PBC? I know that it is a treatment used for oth...

Vera70

•7 years ago

4 Replies

New member here

Hello, my name is Eric and just discovered this site. I am 49, and was diagnosed with PBC in 2013 after a routine blood panel showed elevated AMA. It was never...

Hello, my name is Eric and just discovered this site. I am 49, and was diagnosed...

eahicks68

•7 years ago

7 Replies

Antibiotics for UTI or Bladder infection

what can we take. I am allergic to sulfa drugs. What can I take that will not elevate my liver enzymes and cause a flare up? Connie

what can we take. I am allergic to sulfa drugs. What can I take that will not el...

cfsummerford72

•7 years ago

3 Replies

Feeling inflammation

Every time I eat anything I feel inflammation across the top of my abdomen I am concerned that I have igg4 or ig4g I was already told by my urologist in oct...

Every time I eat anything I feel inflammation across the top of my abdomen I am...

Hidden

•7 years ago

3 Replies

Varices

I'm currently asymptotic at stage 4 (except for the fatigue!) but wondering if there are any "warning signs" to look for regarding the development of varices....

I'm currently asymptotic at stage 4 (except for the fatigue!) but wondering if t...

ILik3Pizza

•7 years ago

13 Replies

tudca

Hi i read your post on Tudca, and i am wondering if you have tried it yet. If so how is it going? I also have researched Tudca and purchased it but my wife has...

Hi i read your post on Tudca, and i am wondering if you have tried it yet. If so...

bostonjim

•7 years ago

6 Replies

Delayed reactions to urso

Hi, everyone, I've been taking urso for about five months. I felt fine up to about a month/six weeks ago but now I'm experiencing a horrible taste that just...

Hi, everyone, I've been taking urso for about five months. I felt fine up to ab...

tinypixie

•7 years ago

11 Replies

Clinical trials

Hi all just thinking anybody doing a clinical trial at the mo

kimphoebe

•7 years ago

5 Replies

Feeling rough in the morning

Hi all I have stage 4 PBC -cirhossis and lately bren feeling really rough on some morning...sick, headache and like I have flu coming on, and then another...

Hi all I have stage 4 PBC -cirhossis and lately bren feeling really rough on so...

bobbycat

•7 years ago

18 Replies

Newbie here, just making introductions

Hey y'all, I'm CoCo. I'm brand spanking new. I know this is mostly for England and the UK, but I'm from the states, in Kentucky. I have been having issues...

Hey y'all, I'm CoCo. I'm brand spanking new. I know this is mostly for England...

CoCoMcD

•7 years ago

19 Replies

Autoimmune Disease?

I was just diagnosed with Nash, from what I've read it also is an autoimmune disease I have PBC I'm wondering with 2 autoimmune diseases in my liver how does...

I was just diagnosed with Nash, from what I've read it also is an autoimmune dis...

Hidden

•7 years ago

8 Replies

Once group

You guys always make me feel better.... living alone is difficult when you are sick 😞 But I have all of you ❤️ Wish I had millions and would buy a big house...

You guys always make me feel better.... living alone is difficult when you are s...

Pamela4475

•7 years ago

14 Replies

Irretractable itch

Starting gabapentine for irretractable itch. Has anyone else this, any side effects etc ? Thanks 🙂

Starting gabapentine for irretractable itch. Has anyone else this, any side effe...

Melwoods

•7 years ago

4 Replies

Sorry to hear your news

I was just wondering how long ago you were diagnosed? and what your numbers were? Stay strong in my thoughts and prayers. You got this!!!

I was just wondering how long ago you were diagnosed? and what your numbers wer...

LorraineLouise

•7 years ago

23 Replies

Diarrhea after CT-Scan

Hi, on Monday I had a CT-Scan with a contrast drinking solution (iodine) and also contrast in veins. I had watery diarrhea on Monday and continue less and less...

Hi, on Monday I had a CT-Scan with a contrast drinking solution (iodine) and als...

ritarobainapbc

•7 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2017

Frustrated With Doctors!

What were your symptoms

Living with PBC

Incredibly painful liver biopsy

Shivering at night

Melatonin for sleep

The Assistance Fund

PBC and fibromalgia

For everyone who has stage 4 pbc

Teeth

Confused

High cholesterol

New Member

New member

CymaBay Announces Positive Interim Results from Its Ongoing Low-Dose Phase 2 Study of Seladelpar in Patients with PBC

Acupuncture

New member here

Antibiotics for UTI or Bladder infection

Feeling inflammation

Varices

tudca

Delayed reactions to urso

Clinical trials

Feeling rough in the morning

Newbie here, just making introductions

Autoimmune Disease?

Once group

Irretractable itch

Sorry to hear your news

Diarrhea after CT-Scan

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