Autoimmune Disease?: I was just diagnosed... - PBC Foundation

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Autoimmune Disease?

8 Replies

I was just diagnosed with Nash, from what I've read it also is an autoimmune disease I have PBC I'm wondering with 2 autoimmune diseases in my liver how does this change things, life expectancy? Meds?

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8 Replies
Pamela4475 profile image
Pamela4475

I don't know if it changes things having the two but definitely get a liver specialist

4pjx__ profile image
4pjx__

I think it's similar to fatty liver. As if you didn't have enough trouble. Lowfat diet.

Best wishes

Pam

butterflyEi profile image
butterflyEi

Hi Hidden

Not sure how this impacts on life expectancy but I know you can help yourself with diet and exercise. If you do not have the fatigue of PBC and you can manage a half hour walk each day and with a low fat diet rich in vegetables and some fruit it can really impact on the damage caused by NASH. There are quite a few articles which can be found on the American Liver Foundation and the British Liver Trust (I suspect there are others) which may give you an insight into how best to help yourself.

Stay well,

best wishes

NotorDJP profile image
NotorDJP

Hello. It is common to have multiple autoimmune diseases. I don't know about life expectancy as each disease has its own track. My only concern is the meds that other diseases require to keep them in check harming the liver. With Nash keeping on a decent diet is key as is exercise. Unfortunately I have the fatigue as well as thyroid issues so exercise is difficult for me. Good luck

Q8Cooper profile image
Q8Cooper

Hi Rebe,

I also have NASH - Nonalcoholic Steatohepatitis. It is fatty liver disease with an emphasis on you also have an inflammation process going on. I was morbidly obese. I saw improvement with as little as a 20 lb weight loss but went the bariatric route and took off more than 100 lbs to take the stress off my liver. I still have NASH at normal weight but it is improved and there are some slim people for what ever reason get it.

Any time you have a co-morbidity there is an increased mortality rate. With that said many people who have PBC with NASH fare as well as those who don't. Last stats I saw was one in ten people in the USA will get fatty liver disease and by the year 2020 they expect the baby boomers in the USA to become the largest growing population requiring liver transplants. Please note that I am not medically qualified to say any of this. Just another PBCer researching information. The good news is now you are on a doctor's radar who can help you move forward under medical advice.

Good Luck and Best wishes!

Kathy - PBC, AIH, NASH, Sarcoidosis of the liver DX 2012 Allergic to Urso

Marysla profile image
Marysla

I have PBC and AIH and it's basically the same treatment but yeah you need to see a specialist for sure

Thank you all for your replies!! I see a Gastro doc should I go to a hepatologist?

Ma-darb profile image
Ma-darb

Hot flashes wet head and neck to the point of not being able to funchion or breath

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