Living with PBC

[Sugardoodle]

Hi folks. I have been living with pbc since 2009 and doc says i probably have had it since before then. The symptoms are hard to live with but you learn how to deal with and learn your limits. Just wanted to say hello.

[Yvonnejulie]

Hello, we do learn to listen to our bodies as often as we can, I'm having a hard time at the moment as I didn't listen to mine and have worked loads plus I fancied a nice spaghetti bolognese with loads of cheese on so I'm paying for that the last few days. I will learn! One day

[Sugardoodle in reply to Yvonnejulie]

Does anyone else get sharp pains in their head?

[butterflyEi]

Hello Sugardoodle

I was diagnosed in 2006 but with hindsight I had symptoms 10 years previously.

Hope you have a good doc who is able to help you.

best wishes

[Sugardoodle in reply to butterflyEi]

Thank you for your reply. Thank God i have excellent doctors.

[Jo_Br]

Hi

I have just been diagnosed after a few hiccups. I was told not PBC at one stage, possibly PSC, going to sound md but after reeling at PBC, then told PSC which is more aggressive, I wanted PBC finally got the yes! Stinger in my tale is I have a more aggressive PBC. Do not know enough about that as yet but will be back to update or tell friends here as I find out more.

I wrote a journal a few years back and the fatigue was so debilitating and I was a mess with exhaustion, but I put it down to care for my Granny who I live with and not having respite, but even a one off week away I still was unable to function if I did normal things.

Mine was as seems with a few people was about to be uncovered after 10 months while initially at the Drs for another reason. I kind of think it explains the fatigue and I am learning to read it more now and not trying for the adrenaline that in healthy people kicks in.