tudca

[bostonjim]

Hi i read your post on Tudca, and i am wondering if you have tried it yet. If so how is it going? I also have researched Tudca and purchased it but my wife has not yet begun taking it. She can not take urso because of side effects and has started oca but within a week the side effects are back. I would love to hear of your experience with Tudca.

[Q8Cooper]

Hi,

I am also interested in any new medication as I am allergic to Urso and it is looking like six months into OCA that I might be moved into the non responder group. Your post asking about Tudca is the first I heard mention of it. So please send any information you find my way even better share with all of us. I know some people prefer to read vs write and I am think there are a few more of us non responders out there?? Is your wife going with out any medicinal treatment now and if so how many years? I went 5 years without treatment and am interested in learning how others are doing that can't take Urso or OCA.

Best wishes to you and your wife,

Kathy - DX 2012 - PBC, AIH, NASH, Sarcoidosis of the liver. Allergic to Urso, Not responding to OCA

[bostonjim in reply to Q8Cooper]

Hi, This is his wife, Amy. I have just started the Ocaliva, and only because at only 4 months my liver labs went pretty high. I am considered at stage 3/4, so my dr was concerned that I needed to at least try the new med. I at one point was thought to have HE. I also quit that med and since no problems with HE. While i was off the meds I actually felt my self again. only painful liver area and pressure in my neck. I have been on the Ocliva about 4 days now and my symptoms are creeping back in. Horrible dizzy and headache at the base of my skull in the back. Yes I am experiencing mild joint pain, but no itching as of yet. Praying these lab numbers go down.

Curious what were your allergy symptoms to Urso. I am actively trying to figure out if I am just not a candidate for the med. We have looked on line for the symptoms or reasons ppl are non responders and have yet to find that information.

We started the research on tudca with hopes it was something that I could take to help. and have no complications. I haven't started it yet. I probable will after the visit with dr this week. I am still trying to be somewhat compliant because of the transplant issues. So far my research with tudca is really a promising way to go for me. I am so sensitive to most meds. probable because of PBC. But Tudca with no fillers seems a better answer. I will try it..

In this forum is a search , search Tudca and one other post will come up and it has many links to get your research started. I also found some things he mentioned very interesting. I found many studies and trials by googling the Tudca. I just was mindful for dates they were done and reliable source.

[Sachin1234]

Tudca seems very promising. Is it ok to take with urso? Does anyone have any idea?

Urso is working well for me right now but I want try tudca as well cause it seems work very well to protect bile duct!!

[DianaRo]

I too had a severe reaction to Urso and had to stop taking it. Tudca sounded so promising, but I developed the same reactions (excruciating stomach pain, diarrhea, etc.) within two days and finally gave up.

[DianaRo]

Re the Tudca response, I should add that after two years, I finally got financial assistance to take Ocaliva and, after three months, my ALP has dropped from 709 to 427 and the only side effect I've had is itching, which I'm keeping under control with antihistamines.

[Betonarme]

Hi,

We did not try Tudca yet.It can be purchased without Prescription. Nutricost is the one with no fillers. May be it's better to talk to your doctor before trying.

If you read the latest scientific articles, future of the PBC therapy will be individually cut combination therapies, all combined with Urso. Fibrates do help, Corticosteroids also help.

In the case of AIH, you have to consider Steroids or immune suppressors.